Monitoring

There are no specific recommendations, because the health status of each patient on discharge will determine further follow-up. Arrange patient follow-up visits at an outpatient clinic for check-ups and to monitor complications.[63]

If there was ocular involvement, patients should be seen by an ophthalmologist; depending on any residual organ damage, they may need to be followed by a specialist such as a pulmonologist, nephrologist, allergist, gastroenterologist, or burn specialist.[2]

Female patients who have not yet reached menopause should follow up with a gynecologist and have a pelvic exam to rule out vaginal synechiae within a few months of hospital discharge. Undiagnosed, vaginal synechiae could impair sexual intercourse or normal vaginal delivery. Prevention of these complications is important.[2][107]

Patients who have difficulty swallowing or mucositis should be seen by an otolaryngologist.[2]

Patients can develop limitations in mobility with decreased strength. Arrange for daily exercises within the patient's capability with a physical therapist and, if needed, an occupational therapist.

The National Institutes of Health Working Group has created a case report form for SJS/TEN to help standardize the documentation of individual cases.[111]

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