International guidelines

United Kingdom

Selumetinib for treating symptomatic and inoperable plexiform neurofibromas associated with type 1 neurofibromatosis in children aged 3 and over

Published by:National Institute for Health and Care Excellence

Last published:2022

Guidelines for the diagnosis and management of individuals with neurofibromatosis 1

Published by:Nerve Tumours UK (formerly Neurofibromatosis Association)

Last published:2007

Europe

Neurofibromatosis 1 French national guidelines based on an extensive literature review since 1966

Published by:Neurofibromatosis France Network

Last published:2020

North America

Care of adults with neurofibromatosis type 1: a clinical practice resource

Published by:American College of Medical Genetics and Genomics (ACMG)

Last published:2018

Cancer and central nervous system tumor surveillance in pediatric neurofibromatosis 1

Published by:American Association of Cancer Research

Last published:2017

Rest of the world

Revised diagnostic criteria for neurofibromatosis type 1 and Legius syndrome: an international consensus recommendation

Published by:International Consensus Group on Neurofibromatosis Diagnostic Criteria (I-NF-DC)

Last published:2021

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