There is no evidence to support screening in the general population. Although the condition is common, it has a classical presentation (abnormal vaginal bleeding) and good prognosis with effective treatment (surgery). For all women, an inquiry should be made for perimenopausal or postmenopausal vaginal bleeding during routine health checks.
ACOG: well-woman health care
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Women with a personal history or a significant family history consistent with Lynch syndrome may benefit from genetic risk assessment. Identification of Lynch syndrome allows for risk-reduction strategies, surveillance for early detection, and cascade testing (counseling and testing of blood relatives of individuals identified with a specific genetic mutation).
Women with Lynch syndrome should be offered regular endometrial biopsy because of their high risk of endometrial cancer (35% to 54% lifetime risk).[74]National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology: colorectal cancer [internet publication].
https://www.nccn.org/guidelines/category_1
[75]American College of Obstetricians and Gynecologists, Society of Gynecologic Oncology. ACOG practice bulletin no. 147: Lynch syndrome. Obstet Gynecol. 2014 Nov;124(5):1042-54.[89]Lancaster JM, Powell CB, Chen LM, et al; SGO Clinical Practice Committee. Society of Gynecologic Oncology statement on risk assessment for inherited gynecologic cancer predispositions. Gynecol Oncol. 2014 Sep 17;136(1):3-7. [Erratum in: Gynecol Oncol. 2015 Sep;138(3):765.]
http://www.ncbi.nlm.nih.gov/pubmed/25238946?tool=bestpractice.com
Screening for Lynch syndrome
A careful personal and family history may identify patients at increased risk of Lynch syndrome who should be offered genetic risk assessment (including counseling and genetic testing) for Lynch syndrome.[74]National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology: colorectal cancer [internet publication].
https://www.nccn.org/guidelines/category_1
[75]American College of Obstetricians and Gynecologists, Society of Gynecologic Oncology. ACOG practice bulletin no. 147: Lynch syndrome. Obstet Gynecol. 2014 Nov;124(5):1042-54.
Criteria for evaluation of Lynch syndrome include:[74]National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology: colorectal cancer [internet publication].
https://www.nccn.org/guidelines/category_1
Blood relative with a known Lynch syndrome pathogenic variant.
Personal history of a tumor with MMR deficiency.
Personal history of a Lynch syndrome-related cancer with diagnosis at age <50 years, or with a synchronous or metachronous related cancer, or with a strong family history of related cancer, or with a strong family history of related cancers.
Family history including a first-degree relative with colorectal and/or endometrial cancer with diagnosis at age <50 years, or with a synchronous or metachronous Lynch syndrome-related cancer, or with additional first- or second-degree relatives with related cancers.
Genetic testing for a specific pathogenic variant can be carried out, if known; germline multigene panel testing is recommended if the variant is unknown.[74]National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology: colorectal cancer [internet publication].
https://www.nccn.org/guidelines/category_1
If Lynch syndrome is confirmed, offer timely cascade testing.[135]American College of Obstetricians and Gynecologists. ACOG committee opinion no. 727: cascade testing: testing women for known hereditary genetic mutations associated with cancer. Obstet Gynecol. 2018 Jan;131(1):e31-4.
https://journals.lww.com/greenjournal/Fulltext/2018/01000/ACOG_Committee_Opinion_No__727__Cascade_Testing_.40.aspx
http://www.ncbi.nlm.nih.gov/pubmed/29266077?tool=bestpractice.com
Surveillance for women with Lynch syndrome
Endometrial biopsy every 1 or 2 years, starting at age 30 to 35 years, is recommended for women with Lynch syndrome.[74]National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology: colorectal cancer [internet publication].
https://www.nccn.org/guidelines/category_1
[75]American College of Obstetricians and Gynecologists, Society of Gynecologic Oncology. ACOG practice bulletin no. 147: Lynch syndrome. Obstet Gynecol. 2014 Nov;124(5):1042-54.
Transvaginal ultrasound may be considered in postmenopausal patients with Lynch syndrome, although it lacks diagnostic accuracy.[75]American College of Obstetricians and Gynecologists, Society of Gynecologic Oncology. ACOG practice bulletin no. 147: Lynch syndrome. Obstet Gynecol. 2014 Nov;124(5):1042-54. Transvaginal ultrasound is not recommended in premenopausal patients because of variation in endometrial stripe thickness during the menstrual cycle.[74]National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology: colorectal cancer [internet publication].
https://www.nccn.org/guidelines/category_1
Women with Lynch syndrome may benefit from a prophylactic, risk-reducing hysterectomy after completion of childbearing.[36]Koornstra JJ, Mourits MJ, Sijmons RH, et al. Management of extracolonic tumours in patients with Lynch syndrome. Lancet Oncol. 2009 Apr;10(4):400-8.
http://www.ncbi.nlm.nih.gov/pubmed/19341971?tool=bestpractice.com
[37]Barrow E, Robinson L, Alduaij W, et al. Cumulative lifetime incidence of extracolonic cancers in Lynch syndrome: a report of 121 families with proven mutations. Clin Genet. 2009 Feb;75(2):141-9.
http://www.ncbi.nlm.nih.gov/pubmed/19215248?tool=bestpractice.com
[75]American College of Obstetricians and Gynecologists, Society of Gynecologic Oncology. ACOG practice bulletin no. 147: Lynch syndrome. Obstet Gynecol. 2014 Nov;124(5):1042-54.[89]Lancaster JM, Powell CB, Chen LM, et al; SGO Clinical Practice Committee. Society of Gynecologic Oncology statement on risk assessment for inherited gynecologic cancer predispositions. Gynecol Oncol. 2014 Sep 17;136(1):3-7. [Erratum in: Gynecol Oncol. 2015 Sep;138(3):765.]
http://www.ncbi.nlm.nih.gov/pubmed/25238946?tool=bestpractice.com
[90]Crosbie EJ, Kitson SJ, McAlpine JN, et al. Endometrial cancer. Lancet. 2022 Apr 9;399(10333):1412-28.
http://www.ncbi.nlm.nih.gov/pubmed/35397864?tool=bestpractice.com
[136]Lancaster JM, Powell CB, Kauff ND, et al. Society of Gynecologic Oncologists Education Committee statement on risk assessment for inherited gynecologic cancer predispositions. Gynecol Oncol. 2007 Nov;107(2):159-62.
http://www.ncbi.nlm.nih.gov/pubmed/17950381?tool=bestpractice.com
Prophylactic bilateral salpingo-oophorectomy (BSO) may also be beneficial because of the high risk of ovarian cancer associated with some Lynch syndrome mutations.[74]National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology: colorectal cancer [internet publication].
https://www.nccn.org/guidelines/category_1
[75]American College of Obstetricians and Gynecologists, Society of Gynecologic Oncology. ACOG practice bulletin no. 147: Lynch syndrome. Obstet Gynecol. 2014 Nov;124(5):1042-54.[91]Schmeler KM, Lynch HT, Chen LM, et al. Prophylactic surgery to reduce the risk of gynecologic cancers in the Lynch syndrome. N Engl J Med. 2006 Jan 19;354(3):261-9.
https://www.nejm.org/doi/full/10.1056/NEJMoa052627
http://www.ncbi.nlm.nih.gov/pubmed/16421367?tool=bestpractice.com
See Primary prevention.
Screening women treated with tamoxifen
Premenopausal women treated with tamoxifen have no increased risk of endometrial cancer and, as such, require no additional monitoring beyond routine gynecologic care.[69]American College of Obstetricians and Gynecologists. ACOG committee opinion no. 601: tamoxifen and uterine cancer. Jun 2014 [internet publication].
https://www.acog.org/clinical/clinical-guidance/committee-opinion/articles/2014/06/tamoxifen-and-uterine-cancer
Routine endometrial surveillance has not been found to be effective in increasing the early detection of endometrial cancer in postmenopausal women using tamoxifen who are not at high risk for endometrial cancer.[137]Fung MF, Reid A, Faught W, et al. Prospective longitudinal study of ultrasound screening for endometrial abnormalities in women with breast cancer receiving tamoxifen. Gynecol Oncol. 2003 Oct;91(1):154-9.
http://www.ncbi.nlm.nih.gov/pubmed/14529676?tool=bestpractice.com
[138]Love CD, Muir BB, Scrimgeour JB, et al. Investigation of endometrial abnormalities in asymptomatic women treated with tamoxifen and an evaluation of the role of endometrial screening. J Clin Oncol. 1999 Jul;17(7):2050-4.
http://www.ncbi.nlm.nih.gov/pubmed/10561257?tool=bestpractice.com
Such surveillance may lead to more invasive and costly diagnostic procedures and is not, therefore, recommended.[139]Demirkiran F, Arvas M, Erkun E, et al. The prognostic significance of cervico-vaginal cytology in endometrial cancer. Eur J Gynaecol Oncol. 1995;16(5):403-9.
http://www.ncbi.nlm.nih.gov/pubmed/8549608?tool=bestpractice.com
[140]Bristow RE, Purinton SC, Santillan A, et al. Cost-effectiveness of routine vaginal cytology for endometrial cancer surveillance. Gynecol Oncol. 2006 Nov;103(2):709-13.
http://www.ncbi.nlm.nih.gov/pubmed/16797686?tool=bestpractice.com
Although screening with ultrasound for thickened endometrial stripe has been advocated (as there is a >7-fold increased risk of endometrial cancer in women with breast cancer exposed to tamoxifen), no clear survival advantage has been demonstrated over clinical surveillance for postmenopausal vaginal bleeding.[68]Ferguson SE, Soslow RA, Amsterdam A, et al. Comparison of uterine malignancies that develop during and following tamoxifen therapy. Gynecol Oncol. 2006 May;101(2):322-6.
http://www.ncbi.nlm.nih.gov/pubmed/16352333?tool=bestpractice.com
Ultrasound may have a role prior to commencing tamoxifen to identify preexisting benign lesions.[66]Neven P, De Muylder X, Van Belle Y, et al. Longitudinal hysteroscopic follow-up during tamoxifen treatment. Lancet. 1998 Jan 3;351(9095):36.
http://www.ncbi.nlm.nih.gov/pubmed/9433432?tool=bestpractice.com
[68]Ferguson SE, Soslow RA, Amsterdam A, et al. Comparison of uterine malignancies that develop during and following tamoxifen therapy. Gynecol Oncol. 2006 May;101(2):322-6.
http://www.ncbi.nlm.nih.gov/pubmed/16352333?tool=bestpractice.com