Patient discussions
Advise patients and/or parents and other carers about the importance of maintenance physiotherapy, occupational therapy, speech therapy, exercise programmes, nutrition, and weight loss or gain.[20][56][142]
Ensure that each patient, their family, and other carers receive individualised instructions and training in a home programme with periodic review and update by their therapists or interdisciplinary team. This may address areas such as positioning, transfers, use of adaptive equipment, range of motion, strength, fitness, and daily living skills.
Discuss treatment options for spastic or other forms of CP (as applicable) with the patient, their family, and other carers to cover subjects such as: the availability of newer medications; eligibility for a baclofen pump; the need for orthopaedic surgery to release contractures and improve walking or sitting.
Explain about possible complications of CP, including treatment options for these.
Provide information to the patient, their family, and other carers about available services (e.g., respite, specialist schools) and support and advocacy groups.[20]
Start planning for transition of care to adult services, involving the patient and family in decisions, when the child is around age 12 to 14 years.[20]
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