Estimated median survival in IPAH, without specific therapies, is 2.8 years, with 1-year, 3-year, and 5-year survival rates of 68%, 48%, and 34%, respectively.[93]D'Alonzo GE, Barst RJ, Ayres SM, et al. Survival in patients with primary pulmonary hypertension. Results from a national prospective registry. Ann Intern Med. 1991 Sep 1;115(5):343-9.
http://www.ncbi.nlm.nih.gov/pubmed/1863023?tool=bestpractice.com
Impact of therapy on survival
Epoprostenol therapy improves survival in IPAH.[65]Barst RJ, Rubin LJ, Long WA, et al; Primary Pulmonary Hypertension Study Group. A comparison of continuous intravenous epoprostenol (prostacyclin) with conventional therapy for primary pulmonary hypertension. N Engl J Med. 1996 Feb 1;334(5):296-301.
https://www.nejm.org/doi/full/10.1056/NEJM199602013340504
http://www.ncbi.nlm.nih.gov/pubmed/8532025?tool=bestpractice.com
In one large series, 1-year, 2-year, 3-year, 4-year, and 5-year survival rates were 88%, 76%, 63%, 56%, and 47%, respectively, compared with 1-year, 2-year, and 3-year predicted survival rates (based on the US National Institutes of Health [NIH] registry equation) of 59%, 46%, and 35%, respectively.[94]McLaughlin VV, Presberg KW, Doyle RL, et al. Prognosis of pulmonary arterial hypertension: ACCP evidence-based clinical practice guidelines. Chest. 2004 Jul;126(1 Suppl):78-92S.
http://www.ncbi.nlm.nih.gov/pubmed/15249497?tool=bestpractice.com
Less robust data suggest that warfarin and oral calcium-channel blockers in acute vasoreactive patients also prolong survival.[95]McLaughlin VV, Sitbon O, Badesch DB, et al. Survival with first-line bosentan in patients with primary pulmonary hypertension. Eur Respir J. 2005 Feb;25(2):244-9. [Erratum in: Eur Respir J. 2005 May;25(5):942.]
https://erj.ersjournals.com/content/25/2/244
http://www.ncbi.nlm.nih.gov/pubmed/15684287?tool=bestpractice.com
Meta-analysis of all placebo-controlled randomised trials showed that pulmonary arterial hypertension (PAH)-targeted therapies reduce all-cause mortality.[96]Savarese G, Paolillo S, Costanzo P, et al. Do changes of 6-minute walk distance predict clinical events in patients with pulmonary arterial hypertension? A meta-analysis of 22 randomized trials. J Am Coll Cardiol. 2012 Sep 25;60(13):1192-201.
http://www.ncbi.nlm.nih.gov/pubmed/22995024?tool=bestpractice.com
[97]Galiè N, Manes A, Negro L, et al. A meta-analysis of randomized controlled trials in pulmonary arterial hypertension. Eur Heart J. 2009 Feb;30(4):394-403.
https://academic.oup.com/eurheartj/article/30/4/394/415127
http://www.ncbi.nlm.nih.gov/pubmed/19155250?tool=bestpractice.com
In addition, observational registry data confirmed an improvement in survival in IPAH, with 1-year, 3-year, and 5-year survival rates of 91%, 74%, and 65%, respectively.[98]Benza RL, Miller DP, Barst RJ, et al. An evaluation of long-term survival from time of diagnosis in pulmonary arterial hypertension from the REVEAL Registry. Chest. 2012 Aug;142(2):448-56.
http://www.ncbi.nlm.nih.gov/pubmed/22281797?tool=bestpractice.com
Baseline prognostic factors
The following are associated with worse prognosis: syncope; male sex; older age; renal insufficiency; New York Heart Association (NYHA) functional class IV; short 6-minute walk distance (6MWD) (variable cut-offs in different studies, approximately <300 to 440 metres); echocardiography showing pericardial effusion and/or tricuspid annular plane systolic excursion <1.5 cm; elevated B-type natriuretic peptide (BNP) levels (>180 nanograms/L or >180 picograms/mL); and invasive haemodynamics showing right atrial pressure >15 mmHg and/or cardiac index ≤2 L/minute/m².[99]Benza RL, Miller DP, Gomberg-Maitland M, et al. Predicting survival in pulmonary arterial hypertension: insights from the Registry to Evaluate Early and Long-Term Pulmonary Arterial Hypertension Disease Management (REVEAL). Circulation. 2010 Jul 13;122(2):164-72.
https://www.ahajournals.org/doi/10.1161/CIRCULATIONAHA.109.898122
http://www.ncbi.nlm.nih.gov/pubmed/20585012?tool=bestpractice.com
[100]Humbert M, Sitbon O, Chaouat A, et al. Survival in patients with idiopathic, familial, and anorexigen-associated pulmonary arterial hypertension in the modern management era. Circulation. 2010 Jul 13;122(2):156-63.
https://www.ahajournals.org/doi/10.1161/CIRCULATIONAHA.109.911818
http://www.ncbi.nlm.nih.gov/pubmed/20585011?tool=bestpractice.com
Prognostic factors after therapy
The following are associated with worse prognosis: NYHA classes III and IV; 6MWD <380 metres; elevated BNP levels; low cardiac index; and high right atrial pressure. It is debatable whether absolute values or changes in these parameters compared with baseline are predictors of outcome. Emerging evidence suggests that the change in 6MWD is not predictive of clinical events.[101]Fritz JS, Blair C, Oudiz RJ, et al. Baseline and follow-up 6-min walk distance and brain natriuretic peptide predict 2-year mortality in pulmonary arterial hypertension. Chest. 2013 Feb 1;143(2):315-23.
http://www.ncbi.nlm.nih.gov/pubmed/22814814?tool=bestpractice.com
One study demonstrated that changes in NYHA functional class, cardiac index, mixed venous oxygen saturation, and N-terminal pro-BNP (NT-proBNP) were predictive of transplant-free survival. Specifically, the achievement with therapy of NYHA classes I or II, a cardiac index ≥ 2.5 L/minute/m², or a mixed venous oxygen saturation ≥65% was associated with improved survival.[102]Nickel N, Golpon H, Greer M, et al. The prognostic impact of follow-up assessments in patients with idiopathic pulmonary arterial hypertension. Eur Respir J. 2012 Mar;39(3):589-96.
https://erj.ersjournals.com/content/39/3/589
http://www.ncbi.nlm.nih.gov/pubmed/21885392?tool=bestpractice.com