Patient discussions

Patients with significant immunodeficiency, defined as <600 CD3+ cells/mm^3, should avoid unnecessary exposure to infectious people and should avoid live virus vaccines.[105] However, most patients who have T-cell counts >600 cells/mm^3 can safely receive these vaccines.[99][100][101][102][103][104][115] Patients with significant immunodeficiency should also be aware of the need to present early to the physician with any fever or other signs of illness.

Awareness of the potential for specific learning disorders can help parents intervene early with requests for individualized education plans for their children.

Patients should also be aware of the recurrence risk in their children. Half of their offspring would be expected to have the disorder, and the severity may be worse in their children.

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