Patient discussions
Patients should have appropriate bracing to increase ambulation. Low-impact exercises, such as cycling and swimming, as well as physiotherapy and yoga, help some patients to feel better and improve cardiac health.
The only medications known to cause a worsening of symptoms are neurotoxic chemotherapy drugs (e.g., paclitaxel, cisplatin, and vincristine), which may cause acute paralysis. Use of these medications should be discussed with a physician to weigh the risks and benefits. Other drugs may have an association with muscle weakness or neuropathy, but no others have been definitively linked to neurotoxicity, and the risks and benefits of the medication should be discussed between a patient and their doctor.[45]
The Charcot-Marie-Tooth Association (CMTA) is an active patient-run US organisation that provides support, as well as supports research into the condition. Patients can sign up for the newsletter or get involved in other ways. Charcot-Marie-Tooth Association (CMTA) Opens in new window The Hereditary Neuropathy Foundation is also an active patient-run organisation providing support and supporting research into CMT. Hereditary Neuropathy Foundation Opens in new window
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