Monitoring

Patients are encouraged to follow up with a consultant in retinal degeneration every 1 to 2 years. This provides the opportunity for the physician to update the patient on the state of research in the field, ensure that any refraction errors are corrected, and address any concerns. Serial visual fields are more useful for following the disease from year to year than electroretinograms. Patients who have chosen to take high doses of vitamin A (retinol) should be monitored by their primary care physician for possible adverse effects of liver damage and hyperlipidaemia.

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