Medulloblastoma

Patients and families/caregivers should be provided with information about treatment options, possible effects of the tumor and treatments (e.g., behavioral and communication problems), and prognosis. This needs to be done in a sensitive manner, bearing in mind that different patients/families/caregivers will differ in how much information they want and when they want it.[92]Taylor LP, Besbris JM, Graf WD, et al. Clinical guidance in neuropalliative care: an AAN position statement. Neurology. 2022 Mar 8;98(10):409-16. https://n.neurology.org/content/98/10/409.long http://www.ncbi.nlm.nih.gov/pubmed/35256519?tool=bestpractice.com [93]National Institute for Health and Care Excellence. Brain tumours (primary) and brain metastases in over 16s. Jan 2021 [internet publication]. https://www.nice.org.uk/guidance/ng99

Postoperatively, patients and parents/caregivers should be advised to look for back pain which worsens at night, and for all of the signs and symptoms of the original presentation.