Patient discussions

Patients should be informed that lymphedema is a chronic, progressive condition without a cure. Providing ongoing psychosocial support helps to improve overall patient well-being. Support groups are a consideration. Compliance will help minimize disease morbidity. All patients should be advised to maintain good skin care and avoid trauma to the skin. They should be instructed to wear protective clothing, particularly when outdoors, and refrain from walking barefoot. Even minor cuts may result in cellulitis, which can worsen lymphedema, as any remaining functional lymphatics are further damaged. Advise patients to remain attentive to any changes noticed within the at-risk limb, and, if they identify any changes, to seek medical advice.[12]​ In addition, patients should be advised to always have two sets of compression garments at their disposal, one being worn while the other is washed. Therefore, a garment is worn permanently, and treatment is interrupted only briefly when showering and, possibly, for formal social occasions.[130]

Patients should be aware that blood pressure monitoring and venipuncture, when necessary, can be safely performed on the affected extremity if other sites are unavailable, although the level of evidence is low.[131]

National Lymphedema Network: patient support groups (US) Opens in new window

Use of this content is subject to our disclaimer