Type 1 diabetes accounts for about 5% to 10% of all patients with diabetes. The World Health Organization indicates that in 2017 there were 9 million people with type 1 diabetes, with the majority originating from high-income countries.[7]World Health Organization. Diabetes fact sheet. Sep 2022 [internet publication].
https://www.who.int/news-room/fact-sheets/detail/diabetes
It is the most commonly diagnosed diabetes of youth (under 20 years of age) and causes ≥85% of all diabetes cases in this age group worldwide.[8]Maahs DM, West NA, Lawrence JM, et al. Epidemiology of type 1 diabetes. Endocrinol Metab Clin North Am. 2010 Sep;39(3):481-97.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2925303
http://www.ncbi.nlm.nih.gov/pubmed/20723815?tool=bestpractice.com
It is estimated that 1.2 million people ages 0 to 19 years have type 1 diabetes worldwide, with 184,100 newly diagnosed cases each year.[9]International Diabetes Federation. Diabetes atlas 10th edition. 2021 [internet publication].
https://diabetesatlas.org/atlas/tenth-edition/?dlmodal=active&dlsrc=https%3A%2F%2Fdiabetesatlas.org%2Fidfawp%2Fresource-files%2F2021%2F07%2FIDF_Atlas_10th_Edition_2021.pdf
It is estimated that in 2021 there were 355,900 total new cases of type 1 diabetes globally among children and adolescents, of which 56% were diagnosed. The prevalence of underdiagnosis varies substantially, with over 95% of new cases diagnosed in Australia and New Zealand, western and northern Europe, and North America, but less than 35% of new cases diagnosed in west Africa, south and southeastern Asia, and Melanesia.[10]Ward ZJ, Yeh JM, Reddy CL, et al. Estimating the total incidence of type 1 diabetes in children and adolescents aged 0-19 years from 1990 to 2050: a global simulation-based analysis. Lancet Diabetes Endocrinol. 2022 Dec;10(12):848-58.
http://www.ncbi.nlm.nih.gov/pubmed/36372070?tool=bestpractice.com
In the US, 244,000 children and adolescents younger than age 20 years had type 1 diabetes. Additionally, in the US from 2014 to 2015, more than 18,000 people aged under 20 years were newly diagnosed with type 1 diabetes (annual rate for new cases about 21 in 100,000).[11]Centers for Disease Control and Prevention. National diabetes statistics report, 2022. Jun 2022 [internet publication].
https://www.cdc.gov/diabetes/data/statistics-report
Crude estimates in the US from 2019 estimated 1.6 million adults aged 20 years or older (5.7% of all US adults with diagnosed diabetes) reported both having type 1 diabetes and using insulin.[11]Centers for Disease Control and Prevention. National diabetes statistics report, 2022. Jun 2022 [internet publication].
https://www.cdc.gov/diabetes/data/statistics-report
There is significant geographic variation in the incidence of type 1 diabetes.[12]Forouhi NG, Wareham NJ. Epidemiology of diabetes. Medicine (Abingdon). 2014;42(12):698-702.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4282306
http://www.ncbi.nlm.nih.gov/pubmed/25568613?tool=bestpractice.com
It is more common in European people and less common in Asian people, with age-adjusted incidence rates ranging from 0.1 per 100,000 per year in parts of China to 40.9 per 100,000 per year in Finland.[12]Forouhi NG, Wareham NJ. Epidemiology of diabetes. Medicine (Abingdon). 2014;42(12):698-702.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4282306
http://www.ncbi.nlm.nih.gov/pubmed/25568613?tool=bestpractice.com
Worldwide, the incidence of type 1 diabetes is increasing by 3% every year, although the reasons for this are unclear.[13]EURODIAB ACE Study Group. Variation and trends in incidence of childhood diabetes in Europe. Lancet. 2000 Mar 11;355(9207):873-6.
http://www.ncbi.nlm.nih.gov/pubmed/10752702?tool=bestpractice.com
[14]Adeloye D, Chan KY, Thorley N, et al. Global and regional estimates of the morbidity due to type I diabetes among children aged 0-4 years: a systematic review and analysis. J Glob Health. 2018 Dec;8(2):021101.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6214490
http://www.ncbi.nlm.nih.gov/pubmed/30410744?tool=bestpractice.com
[15]Patterson CC, Gyürüs E, Rosenbauer J, et al. Trends in childhood type 1 diabetes incidence in Europe during 1989-2008: evidence of non-uniformity over time in rates of increase. Diabetologia. 2012 May 26;55(8):2142-7.
https://link.springer.com/article/10.1007%2Fs00125-012-2571-8
http://www.ncbi.nlm.nih.gov/pubmed/22638547?tool=bestpractice.com
[16]DIAMOND Project Group. Incidence and trends of childhood Type 1 diabetes worldwide 1990-1999. Diabet Med. 2006 Aug;23(8):857-66.
http://www.ncbi.nlm.nih.gov/pubmed/16911623?tool=bestpractice.com
One report showed a more rapid increase in nonwhite racial and ethnic groups.[17]Mayer-Davis EJ, Lawrence JM, Dabelea D, et al; SEARCH for Diabetes in Youth Study. Incidence trends of type 1 and type 2 diabetes among youths, 2002-2012. N Engl J Med. 2017 Apr 13;376(15):1419-29.
https://www.nejm.org/doi/10.1056/NEJMoa1610187
http://www.ncbi.nlm.nih.gov/pubmed/28402773?tool=bestpractice.com
Type 1 diabetes can present at any age, with the highest incidence observed in children aged 10 to 14 years.[18]Norris JM, Johnson RK, Stene LC. Type 1 diabetes-early life origins and changing epidemiology. Lancet Diabetes Endocrinol. 2020 Mar;8(3):226-38.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7332108
http://www.ncbi.nlm.nih.gov/pubmed/31999944?tool=bestpractice.com
There is a slight male predominance, particularly after puberty.[18]Norris JM, Johnson RK, Stene LC. Type 1 diabetes-early life origins and changing epidemiology. Lancet Diabetes Endocrinol. 2020 Mar;8(3):226-38.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7332108
http://www.ncbi.nlm.nih.gov/pubmed/31999944?tool=bestpractice.com