Patient discussions
Patients should inform their physician if they have latent or clinically expressed AIP. They should maintain copies of medical records and laboratory reports that document the diagnosis, and provide them to physicians when needed. They should be familiar with harmful and safe drugs, and have access to recommended websites with pertinent information. American Porphyria Foundation Opens in new window European Porphyria Network Opens in new window A medical alert bracelet may be worn, but any warnings should not preclude use of drugs that may be life-saving under emergency conditions. Follow-up with a physician and screening for renal impairment and early hepatocellular carcinoma are recommended. Patient counseling to avoid triggers such as alcohol and porphyrinogenic medications that may precipitate acute attacks is recommended.[16]
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