International guidelines

Europe

EFNS guideline on limb girdle muscular dystrophies

Published by:European Academy of Neurology (European Federation of Neurological Societies)

Last published:2011

North America

Respiratory management of patients with neuromuscular weakness: an American College of Chest Physicians clinical practice guideline and expert panel report

Published by:American College of Chest Physicians

Last published:2023

Clinical guidance in neuropalliative care: an AAN position statement

Published by:American Academy of Neurology

Last published:2022

Diagnosis and management of Duchenne muscular dystrophy, part 2: respiratory, cardiac, bone health, and orthopaedic management

Published by:Centers for Disease Control and Prevention; DMD Care Considerations Working Group

Last published:2018

Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and neuromuscular, rehabilitation, endocrine, and gastrointestinal and nutritional management

Published by:Centers for Disease Control and Prevention; DMD Care Considerations Working Group

Last published:2018

Consensus-based care recommendations for adults with myotonic dystrophy type 1

Published by:American Academy of Neurology (AAN)/Myotonic Dystrophy Foundation (MDF)

Last published:2018

Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan

Published by:Centers for Disease Control and Prevention; DMD Care Considerations Working Group

Last published:2018

Management of cardiac involvement associated with neuromuscular diseases

Published by:American Heart Association

Last published:2017

Practice guideline update: corticosteroid treatment of Duchenne muscular dystrophy

Published by:American Academy of Neurology

Last published:2016 (reaffirmed 2022)

Evaluation, diagnosis, and management of facioscapulohumeral muscular dystrophy

Published by:American Academy of Neurology (AAN)/American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM)

Last published:2015

Evaluation, diagnosis, and management of congenital muscular dystrophy

Published by:American Academy of Neurology (AAN)/American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM)

Last published:2015

Diagnosis and treatment of limb-girdle and distal dystrophies

Published by:American Academy of Neurology (AAN)/American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM)

Last published:2014

Rest of the world

Diagnosis and management of spinal muscular atrophy: part 2: pulmonary and acute care; medications, supplements and immunizations; other organ systems; and ethics

Published by:SMA Care Group

Last published:2018

Diagnosis and management of spinal muscular atrophy: part 1: recommendations for diagnosis, rehabilitation, orthopedic and nutritional care

Published by:SMA Care Group

Last published:2018

Evidence-based consensus and systematic review on reducing the time to diagnosis of Duchenne muscular dystrophy

Published by:Journal of Pediatrics

Last published:2018

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