Complications

Complication
Timeframe
Likelihood
long term
low

Hypertension is common during acute attacks, but the risk of long-term hypertension also may be increased. This should be treated to avoid complications, including renal damage.[34]

Essential hypertension

long term
low

Some patients with AIP develop chronic renal failure. The mechanism is unclear, but chronic hypertension may contribute. Limited biopsy studies have shown an interstitial nephropathy.[35] A common variant of PEPT2, which transports delta-aminolevulinic acid, may predispose.[36] Plasma porphyrins may increase in AIP patients with renal insufficiency and rarely cause blistering photosensitivity that resembles porphyria cutanea tarda.[37] Some patients with AIP and renal disease have successfully undergone renal transplantation, or combined liver and renal transplantation.[38][39]

Chronic renal failure

long term
low

The risk of liver cancer is clearly increased in AIP and other acute porphyrias, and is usually not associated with an increase in serum alpha-fetoprotein.[40] Screening by imaging is recommended 6-month intervals after 50 years of age in patients who have a history of symptoms, especially if urinary porphobilinogen remains elevated.[41]

Cholangiocarcinoma

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