Abstract withdrawn as it was not presented at the Meeting

S45 - Forced Oscillometry Technique in Children with Preschool Wheeze: Feasibility and Relationship to Clinical Parameters

P89 - The burden and impact of NTM-LD and perspectives on care, UK data from a European patient survey (ENPADE)

P97 - CPET’s utility in understanding unexplained exertional dyspnoea in military personnel.

Amendments to author list

M7 – Improving the use of Treatment Escalation Plans in the care of respiratory inpatients in a large tertiary centre.

R Meharry, K Hamilton. Queen Elizabeth University Hospital, Glasgow, UK.

Amendment to text in abstract

P43 – Breathing matters: patient and carer experience of high flow oxygen therapy at home for progressive, irreversible respiratory failure

J Rodger, H Tedd, A Armstrong, KLM Hester, L Robinson. Newcastle Hospitals NHS Foundation Trust, Newcastle, UK

Background and Aims

High flow oxygen therapy (HFOT) is increasingly used in the management of progressive, irreversible respiratory failure; including domiciliary use as a palliative measure. Currently, there is little understanding of patient and carer experiences of receiving HFOT. We aimed to explore experiences of domiciliary HFOT use.

Method

21 patients (and their carers) for whom HFOT had been initiated for severe hypoxaemic respiratory failure over a 4 year period were sent a questionnaire exploring their experiences.

Thematic analysis was used to analyse free text responses.

Results

nine of 21 patient questionnaires were returned, and 20 carer responses were also returned. All patients and carers understood the reason for home HFOT and reported receiving training on HFOT. All received a home visit by a specialist team member following treatment initiation and felt adequately supported at home.

Of respondents, 100% of patients and 86% of carers reported domiciliary HFOT being beneficial. 44% of patients and 67% of carers reported that HFOT prevented further hospital admissions.

Thematic analysis of qualitative data revealed three emergent themes: treatment concerns, role of specialist support and treatment impact:

1. Treatment concerns

Patients and carers expressed anticipated concerns surrounding use of HFOT equipment at home, yet confidence grew with time and support. Financial implications were also raised.

2. Support

Patients and carers felt that specialist support reduced anxiety and was key to managing at home.

3. Treatment impact

Treatment was described as improving symptom management beyond expectations and facilitating staying at home.

Conclusions

These findings highlight key experiences of patient and carers for whom a domiciliary HFOT service is provided. This pilot data provides insight into pre-treatment concerns and anxieties, the importance of support and education in managing HFOT at home and the positive impacts of domiciliary HFOT. Further qualitative research is needed to develop an in-depth understanding of the lived experiences of home HFOT users. This would inform developments in treatment delivery and patient support, in addition to much needed improvements in quality of life and choice of place of care for those with progressive, severe respiratory failure.

REFERENCES

1. D’Cruz RF, Hart N, Kaltsakas G. High-flow therapy:physiological effects and clinical applications. Breathe (Sheff) 2020;16:200224. doi: 10.1183/20734735.0224-2020.