Table 2

Items representing measurable and validated aspects of spirituality and other dimensions of quality of life at the end of life

Rank noItem (n=284)Endorsed (%)Missing* (n)Spiritual +/ non-spiritual –
1Being supported by religion20 98.90+
S-CT-S-C
2Believing in a supreme power21 96.80+
S-CT
3I feel peaceful22 96.81+
S-WB
4Talking with someone about religious issues23 96.50+
S-CT
5Pray23 96.50+
S-CT
6Believing in an afterlife21 95.41+
S-CT
7Feeling that one is protected by a higher power beyond oneself20 95.10+
S-CT
8It is important to me that my life has meaning24 94.00+
S-WB
9Reading a religious text23 93.30+
S-CT
10Dealing with unmet life goals25 92.91+
S-WB
11Accepting your life situations21 92.21+
S-WB
12In case of dying suddenly today, feeling prepared to leave this life24 90.50+
S-WB
13Feeling that one's life was fulfilling20 90.11+
S-WB
14Coping with feelings of sadness or grief25 85.90
15Coping with feeling useless25 78.72
16Having been able to say important things to those who are close22 78.4 1+
S-WB
17Wanting to share what you are going through with another person25 78.4 1
PS
18Dealing with feeling afraid25 78.33
PS
19Coping with fears about losing your independence25 75.31
PS
20Feeling more disconnected from all things now than before illness24 73.42+
S-WB
21Dealing with feeling dependent on others25 66.50
PS
22Coping with having difficulty relaxing25 65.62
PS
23Receiving emotional support from friends and family25 65.50
PS
24Dealing with maintaining relationships with friends25 54.11
PS
25Dealing with fears about the cancer spreading25 53.22
PS
26Trusting your physician20 37.03
Other
27Being involved with decisions about your medical treatment25 33.72
Other
28Dealing with concerns about your financial situations25 21.62
Other
29Getting adequate information from medical staff about your prognosis25 18.30
Other
30Coping with nausea and vomiting25 16.50
Other
  • +, 15 items representing measurable and validated aspects of spirituality at the end of life in the literature (+reference 25 to literature in which item is validated).

  • –,15 items representing other measurable and validated aspects at the end of life in the literature (quality of life, psychosocial needs, physical needs, communication) (+reference to literature in which item is validated).

  • *Missing represents missing responses without comments or those with written comments such as 'do not know'.

  • †Exactly the same frequency.

  • Other, physical, medical-communicational, financial; PS, psychosocial needs; S-C, spiritual coping; S-CT, spiritual cognitive behavioural context (spiritual beliefs, spiritual activities, spiritual relationships); S-WB, spiritual wellbeing (peace/harmony/trust/hope/acceptance, purpose/meaning, connectedness, completion/fulfilment, positive affect/comfort).