Items representing measurable and validated aspects of spirituality and other dimensions of quality of life at the end of life
Rank no | Item (n=284) | Endorsed (%) | Missing* (n) | Spiritual +/ non-spiritual – |
1 | Being supported by religion20 | 98.9 | 0 | + S-CT-S-C |
2 | Believing in a supreme power21 | 96.8 | 0 | + S-CT |
3 | I feel peaceful22 | 96.8 | 1 | + S-WB |
4 | Talking with someone about religious issues23 | 96.5 | 0 | + S-CT |
5 | Pray23 | 96.5 | 0 | + S-CT |
6 | Believing in an afterlife21 | 95.4 | 1 | + S-CT |
7 | Feeling that one is protected by a higher power beyond oneself20 | 95.1 | 0 | + S-CT |
8 | It is important to me that my life has meaning24 | 94.0 | 0 | + S-WB |
9 | Reading a religious text23 | 93.3 | 0 | + S-CT |
10 | Dealing with unmet life goals25 | 92.9 | 1 | + S-WB |
11 | Accepting your life situations21 | 92.2 | 1 | + S-WB |
12 | In case of dying suddenly today, feeling prepared to leave this life24 | 90.5 | 0 | + S-WB |
13 | Feeling that one's life was fulfilling20 | 90.1 | 1 | + S-WB |
14 | Coping with feelings of sadness or grief25 | 85.9 | 0 | – |
15 | Coping with feeling useless25 | 78.7 | 2 | – |
16 | Having been able to say important things to those who are close22 | 78.4† | 1 | + S-WB |
17 | Wanting to share what you are going through with another person25 | 78.4† | 1 | – PS |
18 | Dealing with feeling afraid25 | 78.3 | 3 | – PS |
19 | Coping with fears about losing your independence25 | 75.3 | 1 | – PS |
20 | Feeling more disconnected from all things now than before illness24 | 73.4 | 2 | + S-WB |
21 | Dealing with feeling dependent on others25 | 66.5 | 0 | – PS |
22 | Coping with having difficulty relaxing25 | 65.6 | 2 | – PS |
23 | Receiving emotional support from friends and family25 | 65.5 | 0 | – PS |
24 | Dealing with maintaining relationships with friends25 | 54.1 | 1 | – PS |
25 | Dealing with fears about the cancer spreading25 | 53.2 | 2 | – PS |
26 | Trusting your physician20 | 37.0 | 3 | – Other |
27 | Being involved with decisions about your medical treatment25 | 33.7 | 2 | – Other |
28 | Dealing with concerns about your financial situations25 | 21.6 | 2 | – Other |
29 | Getting adequate information from medical staff about your prognosis25 | 18.3 | 0 | – Other |
30 | Coping with nausea and vomiting25 | 16.5 | 0 | – Other |
+, 15 items representing measurable and validated aspects of spirituality at the end of life in the literature (+reference 25 to literature in which item is validated).
–,15 items representing other measurable and validated aspects at the end of life in the literature (quality of life, psychosocial needs, physical needs, communication) (+reference to literature in which item is validated).
*Missing represents missing responses without comments or those with written comments such as 'do not know'.
†Exactly the same frequency.
Other, physical, medical-communicational, financial; PS, psychosocial needs; S-C, spiritual coping; S-CT, spiritual cognitive behavioural context (spiritual beliefs, spiritual activities, spiritual relationships); S-WB, spiritual wellbeing (peace/harmony/trust/hope/acceptance, purpose/meaning, connectedness, completion/fulfilment, positive affect/comfort).