Table 1

Characteristics of patients with MPNST

Patient	Sex	Age at diagnosis	Year of diagnosis	Survival months	Source*	Site
*NWCR=North West Regional Cancer Registry; GR=North West Regional NF1 Genetic Register. The original source for the study is stated first, with priority to the NWCR if the patients is present in both registries as having MPNST.
†Patients analysed in the strict geographical regional genetics catchment area for both the Cancer Registry and the NF1 Register.
‡Additional NF1 register patients included in the survival analysis.
§Non-regional patient.
1	Female	44.8	2001	6 (alive)	GR	Left lumbar/flank
2	Male	22.0	1996	9	GR†	Brachial plexus
3	Male	21.1	1996	11	GR/NWCR†	Back of neck
4	Female	24.1	1995	13	GR/NWCR†	Mediastinum
5	Male	24.5	1975	0	GR	Brachial plexus
6	Male	25.9	1992	8	GR/NWCR†	Thorax
7	Male	36.7	1990	0.2	NWCR†	Thorax
8	Male	27.9	1988	17	NWCR†	Pelvis
9	Female	28.4	1998	21	NWCR/GR	Left psoas abdomen
10	Female	34.4	1984	6	NWCR/GR†	Thorax
11	Female	28.3	1991	88	NWCR/GR†	Head (temporal)
11 Tumour 2	Female	31.9	1994	46	NWRCR/GR	Submandibular
12	Female	35.5	1963	2	GR	Thorax
13	Male	35.2	1993	29	NWCR/GR†	Right brachial plexus
14	Male	35.3	1996	43	GR/NWCR†	Maxillary sinus sarcoma
15	Female	49.8	1993	0.5	NWCR†	Hip
16	Male	47.1	1995	59	NWCR/GR†	Right leg, sciatic
17	Male	67.7	1989	0.5	GR/NWCR†	Thorax
18	Female	77.3	1992	53	NWCR†	Head
19	Female	18.8	1984	194 (alive)	NWCR/GR†	Back
20	Male	16.2	1990	120 (alive)	NWCR/GR†	Left median nerve, forearm
21	Female	18.5	1957	510 (alive)	GR	Right buttock
22	Female	55.0	1990	130 (alive)	GR§	Right brachial plexus
23	Female	63.8	1984	200 (alive)	NWCR†	Hip
24	Male	21.1	1995	68 (alive)	NWCR†	Head/face
25	Male	13.2	1986	3	GR†	Lower limb
26	Male	15.5	1992	27	NWCR/GR†	Right thigh, sciatic
27	Female	22.3	1988	3	NWCR/GR†	Left brachial plexus
28	Female	23.1	1994	12	NWCR/GR†	Left neck
29	Female	24.4	1988	0.5	GR/NWCR†	Abdomen
30	Female	36.7	1989	11	GR/NWCR†	Pelvis
31	Female	23.0	1981	240 (alive)	GR	Hip
32	Male	35.8	2001	1 month (alive)	GR	Thigh