List of measures derived from observed consultations (n=102) and from review of consultations recorded in the electronic health record (n=909)
| Measure | Observed consultations (‘elicited’ outcomes) | Electronic health records (‘recorded’ outcomes) |
| Coverage of outcome sets | ||
| Coverage of PRO-2 symptom pair* | Relevant pair of symptoms elicited or not | Relevant pair of symptoms recorded or not |
Coverage of relevant symptoms or signs from a disease activity index†
| Set of outcomes from a relevant index elicited or not | Set of outcomes from a relevant index recorded or not |
| Breadth of outcome coverage | Total number of outcomes elicited from the list of 37 pre-specified symptoms, signs and impacts‡ | Total number of outcomes recorded from the list of 37 pre-specified symptoms, signs and impacts‡ |
| Quantification of outcomes | ||
| Quantification of PRO-2 symptoms | Whether the specific symptom was quantified using standardised descriptors during the consultation | Whether the specific symptom was quantified in the record using standardised descriptors |
| Recording a score for a disease activity index | N/A | Whether a relevant score is recorded in the EHR |
| Recording of the information elicited during a consultation | ||
| Information loss | N/A | Total number of outcomes elicited during the observed consultation minus the number recorded in the EHR for the same consultation (n=102 paired observations) |
| Using a standardised ‘check list’ during consultations | ||
| Coverage of three or more symptoms in a standardised sequence | Any ‘checklist’ of at least three symptoms elicited using direct questions by a practitioner in two or more consultations | N/A |
*PRO-2 for UC (or IBD-U) comprises stool frequency and rectal bleeding; for CD comprises abdominal pain and stool frequency.
†Indices were the Simple Clinical Colitis Activity Index (SCCAI) and Partial Mayo Score for UC, and the Harvey-Bradshaw Index (HBI) and Crohn’s Disease Activity Index (CDAI) for Crohn’s disease.
‡See online supplemental information S1 for the reference list of outcomes.
CD, Crohn’s disease; EHR, electronic health record; IBD-U, inflammatory bowel disease-unclassified; UC, ulcerative colitis.