Table 2

Carer outcome measures collected

	Baseline*	Postal questionnaires					Clinic visits
	Baseline*	Baseline	3 months	6 months	12 months	18 months	Clinic visits
Carer characteristics
Age, gender	X
Relationship to patient	X
Frequency of technology use	X
Presence of difficulties using TiM	X
Quality of life
RAND-36	X		X	X	X	X
Clinical measures
Hospital Anxiety and Depression score	X		X	X	X	X
Zarit Burden Interview	X		X	X	X	X
Adverse events			X	X	X	X	X
MND care satisfaction†	X		X	X	X	X
TiM satisfaction†			X‡	X‡	X‡	X‡

*Investigator completed.
†Questionnaires designed for the trial.
‡Intervention arm only.
MND, motor neuron disease; RAND-36, Rand 36-Item Health Survey; TiM, Telehealth in Motor neuron disease.