Table 2

Study measures and timing of administration

MeasureBaseline-patientBaseline- SDMFollow-up- PatientFollow-up- SDM
Demographic information:
Age (years), sex, marital status, highest completed education, type of home, language spoken, health literacy
XX
Self-reported health and quality of lifeX
Primary outcome:
SDM ACP engagement
(Modified from the ACP Engagement Survey for SDM,43 eg, knowledge of patient's wishes, and confidence making decisions, 5-point Likert scales)
XX
Secondary outcome:
SDM Decisional Conflict (Modified Decisional Conflict Scale49 in SDM)
XX
Secondary outcome:
Patient ACP engagement
(ACP Engagement Survey 15-item version43
XX
Secondary outcome:
Decisional Conflict (Modified Decisional Conflict Scale44)
X
Implementation outcome: Satisfaction and endorsement of interventionX
  • ACP, advance care planning; SDM, substitute decision-maker.