Recommendations

Urgent

Convulsive status epilepticus is a medical emergency that needs immediate treatment with anticonvulsant therapy.[1] Aim for prompt evaluation and rapid management to prevent neurological damage and death. Manage and investigate concurrently.[16]

Suspect convulsive status epilepticus in a patient with seizures that continue for longer than 5 minutes.[1][17]

Characteristic findings include:[17]

  • Intermittent or continuous tonic-clonic seizures involving stiffening of the whole body (tonic phase) followed by vigorous shaking (clonic phase).[17]

  • Mental status impairment (coma, lethargy, confusion).[17]

  • The patient will typically have their eyes open and be unresponsive to commands or sensory stimuli.[18]

Consider the possibility of non-epileptic seizures (dissociative seizures).[16]

Take a focused collateral history from family, carers, and/or witnesses.

Attempt intravenous access in a large vein and take emergency bloods for:[16]

  • Glucose[19]

  • Arterial blood gas[16]

  • Urea[19]

  • Creatinine[16]

  • Liver function tests[16]

  • Sodium, calcium, and magnesium[16][19]

  • Full blood count[16][19]

  • C-reactive protein[16][19]

  • Clotting screen[1]

  • Anticonvulsant drug levels (irrespective of a known history of epilepsy).[16]

Consider a toxicology screen (blood and urine samples) if you suspect substance misuse/overdose.[19]

Provide resuscitation.[1] Once you have excluded non-epileptic seizures, do not delay emergency treatment by waiting for test results. See Management.

Key Recommendations

[Figure caption and citation for the preceding image starts]: Convulsive status epilepticus: key diagnostic and management recommendations flowchart. BP, blood pressure; Ca, calcium; CRP, C-reactive protein; ECG, electrocardiogram; EEG, electroencephalogram; FBC, full blood count; GCS, Glasgow Coma Scale; ICU, intensive care unit; Mg, magnesium; Na, sodiumCreated by the BMJ Knowledge Centre based on key references (see references page) [Citation ends].Convulsive status epilepticus: key diagnostic and management recommendations flowchart. BP, blood pressure; Ca, calcium; CRP, C-reactive protein; ECG, electrocardiogram; EEG, electroencephalogram; FBC, full blood count; GCS, Glasgow Coma Scale; ICU, intensive care unit; Mg, magnesium; Na, sodium

Suspect non-convulsive status epilepticus (NCSE) in:[20]

  • A patient with a previous diagnosis of epilepsy: if there is any prolonged change in personality, prolonged post-ictal confusion (greater than 20 minutes), or recent-onset psychosis

  • A non-comatose patient with no history of epilepsy: if there is confusion or change in personality (typically seen in the setting of a metabolic derangement, encephalitis, or other acute precipitant).

If you suspect NCSE, refer the patient to the neurology team for specialist clinical assessment. Be aware that NCSE can follow convulsive status epilepticus.

Full recommendations

Convulsive status epilepticus

Suspect convulsive status epilepticus in a patient with seizures that continue for longer than 5 minutes.[1][17]

  • The seizures will be intermittent or continuous tonic-clonic seizures involving stiffening of the whole body (tonic phase) followed by vigorous shaking (clonic phase).[17]

  • Mental status impairment (coma, lethargy, confusion) is a characteristic finding.[17]

  • The patient will typically have their eyes open and be unresponsive to commands or sensory stimuli.[18][21]

Manage and investigate the patient concurrently.[16] Aim for prompt evaluation and rapid management to prevent immediate complications (e.g., neurological deficits, cognitive dysfunction) and long-term sequelae.[16] Specifically, seek to achieve seizure control within the first 1 to 2 hours after onset of symptoms as this will significantly affect the prognosis.[22] Convulsive status epilepticus is:

  • A medical emergency[1]

  • The most common presentation of status epilepticus. It is associated with significant morbidity and a mortality of 16% to 39%.[23][24][25][26][27]

Non-convulsive status epilepticus

Suspect non-convulsive status epilepticus:[20]

  • In a patient with a previous diagnosis of epilepsy: if there is any prolonged change in personality, prolonged post-ictal confusion (greater than 20 minutes), or recent-onset psychosis

  • In a non-comatose patient with no history of epilepsy: if there is confusion or personality change (typically seen in the setting of a metabolic derangement, encephalitis, or other acute precipitant).

If you suspect non-convulsive status epilepticus, refer the patient to the neurology team (recommendation based on clinical experience).

  • Non-convulsive status epilepticus can follow convulsive status epilepticus.

Practical tip

Be aware that non-convulsive status epilepticus is much less common than convulsive status epilepticus and can be easily missed because motor findings are limited or absent.

Consider the possibility of non-epileptic (dissociative) seizures (previously termed psychogenic non-epileptic seizures).[1]

Non-epileptic seizures are a common cause of prolonged convulsions and can be confused with status epilepticus, given the two present in a similar manner.[1][21] Key features of non-epileptic seizures include:[16]

  • Long (>5 minutes) duration of individual seizures

  • Fluctuating course (waxing and waning)

  • Asynchronous rhythmic movements

  • Pelvic thrusting

  • Side-to-side head/body movements during a convulsion

  • Closed eyes

  • Ictal crying

  • Later recall of items during the seizure.

Practical tip

Non-epileptic seizures are the most important differential in the emergency setting. Emergency anticonvulsant drug therapy is not only ineffective but also potentially dangerous, putting patients at risk of respiratory depression, aspiration, and death.[21] Seek specialist advice if you suspect non-epileptic seizures.

See  Differentials for other mimics. 

Take a focused collateral history from family, carers, and/or witnesses. Concurrently manage the patient.[16]

Establish:

  • Approximate duration of the convulsion. Time a seizure from its onset if possible[28]

  • Whether the patient already has a diagnosis of epilepsy

    • If so, ask about any recent changes to medication[7][21]

    • Be alert to non-adherence to antiseizure medication as a possible cause of status epilepticus[1]

  • Whether any medication has already been given to terminate the seizure[21]

  • Any symptoms preceding the seizure that may suggest its cause (e.g., hypoglycaemia, thiamine deficiency, meningitis)[1][21]

    • Acute causes of status epilepticus include:[11]

      • Hypoxia

      • Trauma

      • Tumour

      • Stroke

      • Metabolic abnormalities

      • Drug/alcohol intoxication/withdrawal[1]

      • Inadequate anticonvulsant levels in a known epileptic

      • Infection

  • Whether the patient is pregnant. If the gestational age is ≥20 weeks, consider eclampsia.[1][21] See  Pre-eclampsia.​

  • Relevant past medical history, including:[21]

    • Diabetes

    • Hypertension

    • Heart disease

  • Medication use[21]

  • Alcohol-use disorder[14]

  • Any other potential provoking factors, including recent recreational drug use (e.g., cocaine, amphetamines).[21]

Practical tip

Status epilepticus usually resolves after restarting anticonvulsant medication in patients with epilepsy. However, bear in mind that people with epilepsy may have an acute cause for their status epilepticus.[11]

Convulsive status epilepticus

Assess the patient’s respiratory and cardiac function.[27] In particular, check:

  • Colour for cyanosis, pallor

  • Airway for signs of obstruction

  • Breathing rate and quality

  • Pulse rate and volume

  • Blood pressure

  • Chest (auscultate).

Assess the patient’s level of consciousness. Check pupils for size and reactivity.

Examine the patient’s abdomen.

  • If there is a palpable uterus, the patient may have eclampsia.[21] See Pre-eclampsia.

Non-convulsive status epilepticus

Refer the patient to the neurology team for specialist clinical assessment (recommendation based on clinical experience).

Laboratory tests

Once you have excluded non-epileptic seizures (dissociative seizures), do not delay emergency treatment by waiting to take samples or receive results (this recommendation is based on clinical experience).

Take emergency bloods in all patients for:

  • Glucose[19]

    • Hypoglycaemia and hyperglycaemia are treatable and reversible causes of seizures and status epilepticus

  • Arterial blood gases[16]

    • May show abnormal values in the presence of acidosis or alkalosis

    • Significant metabolic abnormalities are common following prolonged seizures. These usually normalise following seizure termination

  • Urea[19]​​

    • Elevation may provoke acute symptomatic seizures[19]

  • Creatinine[19]

    • Take as a baseline measure, to investigate the cause of seizures, and to identify those who might be at particularly high risk of complications such as acute kidney injury (from rhabdomyolysis).[19] See   Acute kidney injury

    • Elevated creatinine may provoke acute symptomatic seizures[19]

  • Liver function tests[16][19]

    • May indicate systemic disease or alcohol-use disorder[19]

  • Sodium calcium, and magnesium[16][19]

    • Electrolytes abnormalities such as hyponatraemia, hypocalcaemia, and hypomagnesaemia can cause seizures

  • Full blood count[16][19]

    • May indicate infection (raised white blood cell count) or chronic alcohol-use disorder (raised mean corpuscular volume)[19][29]

  • C-reactive protein[16][19]

    • High levels may indicate infection or systemic inflammation

  • Clotting screen[19]

    • Take as a baseline measure and to identify patients with coagulopathy[19]

  • Anticonvulsant drug levels (irrespective of a known history of epilepsy)[16]

    • A sub-therapeutic anticonvulsant level is a common cause of status epilepticus in people with epilepsy. This is usually due to poor adherence to treatment.[9]

Consider a toxicology screen (blood and urine samples) if you suspect substance misuse/overdose.[19]

Practical tip

Save 5 mL of serum and 50 mL urine for future analysis, e.g., toxicology.

Chest x-ray

Arrange an emergency chest x-ray to evaluate the possibility of aspiration. See Aspiration pneumonia.

ECG

Consider ECG to evaluate the possibility of arrhythmias or cardiac ischaemia which may be the result of prolonged status epilepticus (and, in rare cases, its cause).

CT-head

Consider an urgent computed tomography (CT)-head in a patient with no previous history of epilepsy or with new focal neurology, head injury, or for any patient with refractory status epilepticus.[16]

Other investigations

If a clear precipitant has not been identified, consider other emergency investigations based on individual clinical circumstances. For example, consider a lumbar puncture for cerebrospinal fluid evaluation if you suspect central nervous system infection or inflammation.[30]

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