ERIC Number: EJ869989
Record Type: Journal
Publication Date: 2010-Feb
Pages: 9
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0016-9013
EISSN: N/A
Concordance of Family and Staff Member Reports about End of Life in Assisted Living and Nursing Homes
Rich, Shayna E.; Williams, Christianna S.; Zimmerman, Sheryl
Gerontologist, v50 n1 p112-120 Feb 2010
Purpose: To identify differences in perspectives that may complicate the process of joint decision making at the end of life, this study determined the agreement of family and staff perspectives about end-of-life experiences in nursing homes and residential care/assisted living communities and whether family and staff roles, involvement in care, and interaction are associated with such agreement. Design and Methods: This cross-sectional study examined agreement in 336 family-staff pairs of postdeath telephone interviews conducted as part of the Collaborative Studies of Long-Term Care. Eligible deaths occurred in or within 3 days of leaving one of a stratified random sample of 113 long-term care facilities in four states and after the resident had lived in the facility 15 days of the last month of life. McNemar p values and kappas were determined for each concordance variable, and mixed logistic models were run. Results: Chance-adjusted family-staff agreement was poor for expectation of death within weeks (66.9% agreement, [kappa] = 0.33), course of illness (62.9%, 0.18), symptom burden (59.6%, 0.18), and familiarity with resident's physician (59.2%, 0.05). Staff were more likely than family to expect death (70.2% vs 51.5%, p less than 0.001) and less likely to report low symptom burden (39.6% vs 46.6%, p = 0.07). Staff involvement in care related to concordance and perspectives of adult children were more similar to those of staff than were other types of family members. Implications: Family and staff perspectives about end-of-life experiences may differ substantially; efforts can be made to improve family-staff communication and interaction for joint decision making.
Descriptors: Residential Care, Familiarity, Death, Interaction, Nursing Homes, Decision Making, Caregiver Role, Caregivers, Family Role, Caregiver Attitudes, Family Attitudes, Interviews, Telephone Surveys, Health Services, Models, Expectation, Symptoms (Individual Disorders), Terminal Illness
Oxford University Press. Great Clarendon Street, Oxford, OX2 6DP, UK. Tel: +44-1865-353907; Fax: +44-1865-353485; e-mail: jnls.cust.serv@oxfordjournals.org; Web site: http://gerontologist.oxfordjournals.org
Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A