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ERIC Number: EJ683550
Record Type: Journal
Publication Date: 2005-Apr
Pages: 0
Abstractor: author
ISBN: N/A
ISSN: ISSN-0145-482X
EISSN: N/A
In the Darkness There Can Be Light: A Family's Adaptation to a Child's Blindness
Ulster, Alissa A.; Antle, Beverley J.
Journal of Visual Impairment and Blindness, v99 n4 p209-218 Apr 2005]
Blindness or significant visual impairment can be very difficult for families to cope with. In this article, the authors present an in-depth case study of a family's journey through diagnosis and treatment for retinoblastoma (RB), a rare form of childhood eye cancer affecting the retina. As a part of the analysis of this family?s experience, the authors examine assumptions about children's abilities to cope and predominant notions of quality of life through the experiences of one child, Alex, and his family. In spite of signs of psychological trauma, Alex demonstrated a remarkable adaptive ability and had more insights about his experiences than anticipated. Similarly, following a period of considerable worry for their child's health and his ability to adjust to blindness, the parents, too, feel their family has a good quality of life.
Publication Type: Journal Articles; Reports - Descriptive
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A