ERIC Number: EJ1452804
Record Type: Journal
Publication Date: 2024
Pages: 13
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1366-8250
EISSN: EISSN-1469-9532
My Plan for a Good Life, Right to the End: An Accessible Approach to Advance Care Planning
Nic McKenzie; Brigit Mirfin-Veitch; Henrietta Trip; Jennifer Conder
Journal of Intellectual & Developmental Disability, v49 n4 p475-487 2024
Background: People with intellectual disabilities have traditionally been excluded from Advance Care (AC) planning. This study aimed to improve access to and the quality of AC planning for this community. Method: A Participatory Action Research study was led, and participated in, by co-researchers with intellectual disabilities and disability service managers. A new approach to AC planning was trialled and evaluated. Results: The new approach aided the initiation and development of comprehensive AC plans with people with intellectual disabilities. The completed plans were approved by health professionals. Contributing factors related to getting started, the materials, and the process. Conclusion: The emergent framework, developed in response to the findings, provides a potential pathway for implementation and further exploration of AC planning.
Descriptors: Death, Intellectual Disability, Long Range Planning, Quality Assurance, Health Services, Influences, Foreign Countries, Adults, Older Adults, Personal Autonomy
Taylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: New Zealand
Grant or Contract Numbers: N/A