ERIC Number: EJ1433004
Record Type: Journal
Publication Date: 2024-Jul
Pages: 10
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0162-3257
EISSN: EISSN-1573-3432
Validating the Communication and Symbolic Behavior Scales-Developmental Profile Infant-Toddler Checklist (CSBS-DP ITC) beyond Infancy in the CDKL5 Deficiency Disorder
Jacinta Saldaris; Helen Leonard; Kingsley Wong; Peter Jacoby; Mary Spence; Eric D. Marsh; Tim A. Benke; Scott Demarest; Jenny Downs
Journal of Autism and Developmental Disorders, v54 n7 p2526-2535 2024
CDKL5 deficiency disorder (CDD) results in early-onset epilepsy and lifelong cognitive and motor impairments. With no validated measure for communication in CDD, this study evaluated the psychometric properties of the Communication and Symbolic Behavior Scales-Developmental Profile Infant Toddler Checklist (CSBS-DP ITC). Caregivers (n = 150; affected individuals aged 1-29 years) completed the CSBS-DP ITC. Distribution of scores indicated a floor effect. There was poor divergent validity for the three-factor model but goodness of fit and convergent validity data were satisfactory for the one-factor model. Individuals with poorer overall functional abilities scored lower on the CSBS-DP ITC. Test-retest reliability was excellent. The floor effect could explain the very high reliability, suggesting problems as a sensitive outcome measure in clinical trials for CDD.
Descriptors: Validity, Infants, Toddlers, Check Lists, Intellectual Disability, Goodness of Fit, Reliability, Caregiver Attitudes, Scores, Epilepsy, Psychometrics, Profiles, Behavior Rating Scales, Communication Skills, Child Development
Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://bibliotheek.ehb.be:2123/
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: National Institutes of Health (NIH) (DHHS)
Authoring Institution: N/A
Identifiers - Assessments and Surveys: Communication and Symbolic Behavior Scales
Grant or Contract Numbers: U01NS11431201A1