ERIC Number: EJ1422836
Record Type: Journal
Publication Date: 2021-Sep
Pages: 18
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-2195-7177
EISSN: EISSN-2195-7185
Parent Experiences of Autism Spectrum Disorder Diagnosis: A Scoping Review
Amber Makino; Laura Hartman; Gillian King; Pui Ying Wong; Melanie Penner
Review Journal of Autism and Developmental Disorders, v8 n3 p267-284 2021
The purpose of this review was to identify the quantity, breadth, and methodological characteristics of literature examining parent perspectives of autism spectrum disorder diagnosis, synthesize key research findings, and highlight gaps in the current literature. A systematic search was conducted for the period January 1994-February 2020. One hundred and twenty-two articles underwent data extraction. The majority of studies took place in Europe and North America in high-income countries. Over half of the studies used qualitative methodology. Four key components of the diagnostic experience were identified: journey to assessment, assessment process, delivery of the diagnosis and feedback session, and provision of information, resources, and support. Themes of parental emotions and parental satisfaction with the diagnostic process were also found.
Descriptors: Parents, Experience, Autism Spectrum Disorders, Clinical Diagnosis, Foreign Countries, Research Methodology, Qualitative Research
Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://bibliotheek.ehb.be:2123/
Publication Type: Journal Articles; Information Analyses
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Europe; North America
Grant or Contract Numbers: N/A