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ERIC Number: EJ1372920
Record Type: Journal
Publication Date: 2023-Apr
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: EISSN-1461-7005
Conducting Caregiver Focus Groups on Autism in the Context of an International Research Collaboration: Logistical and Methodological Lessons Learned in South Africa
Guler, Jessy; Stewart, Kearsley A.; de Vries, Petrus J.; Seris, Noleen; Shabalala, Nokuthula; Franz, Lauren
Autism: The International Journal of Research and Practice, v27 n3 p751-761 Apr 2023
Most autism research has been conducted in high-income countries, with participants typically from White, upper-middle-income families. Given the disparities experienced by autistic individuals living in underserved communities globally, there is a critical need for research to include individuals from culturally, linguistically, socioeconomically, and geographically diverse backgrounds to understand their unique needs. Qualitative research has the potential to describe the "lived experience" of families historically underrepresented in the autism literature. Here we describe the logistical and methodological challenges of conducting focus group discussions with 22 caregivers of young autistic children living in Cape Town, South Africa. Logistical challenges included (1) recruitment, (2) response rate, and (3) resource access. Methodological challenges included (1) participant background and experiences, (2) interpersonal dynamics, and (3) research ethics. We present recommendations based on lessons learned to reduce these challenges and improve rigorous qualitative research practices in similar low-resource contexts.
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://bibliotheek.ehb.be:2993
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: National Institute of Mental Health (NIMH) (DHHS/NIH)
Authoring Institution: N/A
Identifiers - Location: South Africa
Grant or Contract Numbers: K01MH104370; R21MH120696