ERIC Number: EJ1303842
Record Type: Journal
Publication Date: 2021-Sep
Pages: 8
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1354-4187
EISSN: N/A
"It's Not the Same without You:" Exploring the Experience and Perception of Transition for People with Intellectual Disabilities and Dementia
Sheth, Alisa Jordan; Kramer, Jessica M.; Magasi, Susan; Heller, Tamar; Nishida, Akemi; Hammel, Joy
British Journal of Learning Disabilities, v49 n3 p365-372 Sep 2021
Background: For people with intellectual disabilities and dementia, transitions are likely to become increasingly common as they age. While transitions experienced by people with intellectual disabilities in young adulthood are frequently studied, less is known about transitions in older adults, including residential, vocational and leisure changes. This article aims to explore the experiences of transition from the perspectives of people with intellectual disabilities and dementia, including the impact on their daily lives. Methodology: Three women with intellectual disabilities and dementia living in residential settings participated in participant observations and informal interviews across a variety of environments and activities. Field notes and interview transcripts underwent a thematic analysis focusing on transitions. Findings: Participants experienced the impact of transitions in their residential placements, day programming, leisure activities and relationships. Themes related to their experiences of transitions included making sense of transitions, utilising peer care networks for support and tackling the looming threat of loss and transition. Conclusions: Peer care networks and friendships are crucial in supporting people during and after transitions. Receiving effective supports to maintain relationships, roles and activities, even in seemingly minor ways, is an important right for people with intellectual disabilities and dementia, particularly as care needs increase.
Descriptors: Intellectual Disability, Dementia, Aging (Individuals), Adjustment (to Environment), Older Adults, Females, Residential Care, Day Programs, Leisure Time, Interpersonal Relationship, Coping, Social Support Groups
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://bibliotheek.ehb.be:2191/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A