ERIC Number: EJ1299762
Record Type: Journal
Publication Date: 2021-Jul
Pages: 13
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: N/A
Stressed Parents, Happy Parents. An Assessment of Parenting Stress and Family Quality of Life in Families with a Child with Phelan-McDermid Syndrome
Journal of Applied Research in Intellectual Disabilities, v34 n4 p1076-1088 Jul 2021
Background Individuals with Phelan-McDermid syndrome (PMS) are characterised by phenotypical traits that can be experienced as challenging by their environment. This study assessed parenting stress and Family Quality of Life (FQOL) in parents of individuals with PMS and identified potential contributing variables. Method: Mothers (n = 14) and fathers (n = 13) of individuals with PMS (n = 14; 6 females, 8 males; age 2-37, M = 20, SD = 11.92) completed questionnaires on parenting stress, FQOL, adaptive behaviour and background characteristics. Results: Mothers and fathers experienced high, similar and related levels of parenting stress and FQOL satisfaction. Parenting stress and FQOL satisfaction were inversely related. High and low ratings were retrieved for subscales measuring feelings of parental role restriction and emotional well-being, respectively. The adaptive skills of the individuals with PMS were related to fathers' parenting stress and FQOL satisfaction. Conclusions: Clinical practice is encouraged to be attentive to family dynamics and grasp opportunities to interact with these dynamics.
Descriptors: Genetic Disorders, Child Rearing, Stress Variables, Family Environment, Quality of Life, Parent Attitudes, Adjustment (to Environment), Well Being, Parent Role, Mothers, Fathers
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://bibliotheek.ehb.be:2191/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A