ERIC Number: EJ1287356
Record Type: Journal
Publication Date: 2021-Mar
Pages: 16
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1744-6295
EISSN: N/A
Participation in Daily Life for Adults with Profound Intellectual (and Multiple) Disabilities: How High Do They Climb on Shier's Ladder of Participation?
Talman, Lena; Stier, Jonas; Wilder, Jenny; Gustafsson, Christine
Journal of Intellectual Disabilities, v25 n1 p98-113 Mar 2021
Participation is the goal of Swedish disability policy, but it is difficult to achieve for adults with profound intellectual (and multiple) disabilities (PI(M)D). Since these adults are dependent on others in every aspect of their lives, others control their ability to participate in everyday life decisions. This study used observations, analyzed with Shier's ladder of participation, to elucidate and describe participation in daily life for adults with PI(M)D living in a group home. The results showed that the adults often reached the first three levels of Shier's ladder, one adult reached the fourth level once, and no one reached the fifth level. Participation on a higher level, therefore, seems hard to reach for adults. Staff members' attitudes toward the adults' capability can also be a barrier to participation. Applying Shier's ladder of participation can provide valuable information that might lead to increased participation in daily life for adults with PI(M)D.
Descriptors: Daily Living Skills, Participation, Models, Civil Rights, Public Policy, Adults, Multiple Disabilities, Severe Disabilities, Institutionalized Persons, Group Homes, Caregiver Attitudes, Facilitators (Individuals), Barriers, Listening, Self Expression, Responsibility, Participative Decision Making, Foreign Countries, Staff Role, Empowerment
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Sweden
Grant or Contract Numbers: N/A