ERIC Number: EJ1281688
Record Type: Journal
Publication Date: 2021-Feb
Pages: 9
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1090-1981
EISSN: N/A
Stakeholder Experiences with Gender Identity Data Capture in Electronic Health Records: Implementation Effectiveness and a Visibility Paradox
Health Education & Behavior, v48 n1 p93-101 Feb 2021
Background: Advocates have endorsed transgender visibility via gender identity (GI) data capture with the advent of the Affordable Care Act and electronic health record (EHR) requirements. Visibility in data in order to enumerate a population contrasts with ways in which other LGBT and public health scholars have deployed these concepts. Aims: The article aims to assess the effectiveness of GI data capture in EHRs and implications for trans health care quality improvements and research. Method: Semistructured interviews were conducted with 27 stakeholders from prominent gender-affirming care providers across the United States. A range of informants shared their experiences with GI data capture. Interviews were coded, themes were identified, and the extended case method was used to contextualize data in relation to key concepts. Results: Data capture is effective for increasing patient counts and making quality improvements but limited in terms of enhancing gender-affirming care depending on provider size, type, and competencies. Many challenges were highlighted regarding use of GI data for research, sharing GI data across systems, as well the ways data capture erases the dynamism of GI. These issues create conditions for limited kinds of disclosure, capture of particular categories, and care and treatment barriers. Discussion: Stakeholders exposed a visibility paradox emerging from GI data capture. While data fields are created to increase the visibility of trans persons in medical settings and in health research, they work to increase the visibility of some while reducing the visibility of other gender diverse persons, including trans, nonbinary, and cisgender. Conclusion: New approaches are needed to explore implications of GI data standardization and the logics of health care in the face of gender expansiveness.
Descriptors: Confidential Records, Records (Forms), LGBTQ People, Sexual Identity, Allied Health Personnel, Barriers, Data Collection, Electronic Publishing, Data Use, Self Disclosure (Individuals), Patients, Clinics
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://bibliotheek.ehb.be:2814
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: National Science Foundation (NSF); Agency for Healthcare Research and Quality (AHRQ) (DHHS/PHS)
Authoring Institution: N/A
Grant or Contract Numbers: CNS1069311; K12HS026385