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ERIC Number: EJ1275358
Record Type: Journal
Publication Date: 2020-Oct
Pages: 14
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1934-9491
EISSN: N/A
Experiences with the Mental Health Service System of Family Caregivers of Individuals with an Intellectual/Developmental Disability Referred to START
Holingue, Calliope; Kalb, Luther G.; Klein, Ann; Beasley, Joan B.
Intellectual and Developmental Disabilities, v58 n5 p379-392 Oct 2020
People with intellectual and developmental disabilities (IDD) frequently have behavioral or mental health needs, but experience obstacles to treatment. Family caregivers are often responsible for coordinating the care of individuals with IDD. This study examined family caregiver experiences using intake data from a national tertiary crisis intervention model designed for people with IDD and mental health needs. Caregivers (n = 488) completed the Family Experiences Interview Schedule. Less than half of families reported satisfaction with the mental health services received. Notable gaps were in crisis, night and weekend services, choice of services and providers, communication and coordination between providers, and specialized training. Experiences were worse for caregiving fathers and individuals with IDD with co-occurring chronic medical conditions.
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A