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ERIC Number: EJ1225995
Record Type: Journal
Publication Date: 2018
Pages: 10
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-2047-3869
EISSN: N/A
Challenging Sleep-Wake Behaviors Reported in Informal, Conversational Interviews of Caregivers of Children with Fetal Alcohol Spectrum Disorder
Spruyt, Karen; Ipsiroglu, Osman; Stockler, Sylvia; Reynolds, James N.
International Journal of Developmental Disabilities, v64 n2 p65-74 2018
Objective: Sleep complaints are clinically expected in children exposed to alcohol during pregnancy. We aim to reveal patterns of association among sleep--wake behaviors that are challenging in the life of children with fetal alcohol spectrum disorders (FASD). Methods: Through text-mining analyses, we numericized the transcripts of 59 caregiver's informal, conversational interviews. That is, the relative frequencies-of-occurrences of words as well as their semantic specificities (italic) were clustered, categorized, and visualized for patterns. Results: A total of 4008 words were indexed where "sleep" took the 91st place of most important words. "Sleep" and "wake" were however not associatively conversed throughout the interviews. Sleep-related words conversed were: "night," "nap," "apnea," "asleep," "awake," "bed," "bedroom," "bedtime," "mattress," "melatonin," "overnight," and "wakeup." Among some FASD-characteristic words describing the challenges were: "huge," "alcohol," "manage*," "stop," "adopt," "crazy*." The semantic space reflecting these challenges experienced in caring for children with FASD was divided into two axes: child-oriented vs. other-oriented words, and day-related and night-related words. The position of sleep shows that problematic sleep was expressed as a 'family' issue. Clumsy* was interrelated with problematic sleeping and waking. Despite that mostly "night" was associatively conversed, the association of "Routines," "Managing," and "Planning" with "sleep" underscores the challenges faced. Conclusion: When conversing caregivers of children with FASD seldom interrelate 'sleep' but rather 'night' with FASD-characteristics. Increased sleep awareness combined with educational initiatives regarding sleep are advocated.
Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Publication Type: Journal Articles; Tests/Questionnaires
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Canada
Grant or Contract Numbers: N/A