ERIC Number: EJ1199202
Record Type: Journal
Publication Date: 2019-Jan
Pages: 13
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: N/A
Family Perceptions of the Impacts of a Home and Community Based Services Autism Waiver: Making Family Life Possible
Eskow, Karen Goldrich; Summers, Jean Ann
Journal of Applied Research in Intellectual Disabilities, v32 n1 p159-171 Jan 2019
Background: An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. Methods: This study used qualitative research methods to explore parent perspectives about the impact of HCBS Waiver services on the child/youth with autism and their family. In-depth interviews focused on aspects of the programme they valued, identification of barriers and general issues they experienced. Results: Results of the qualitative study indicated that improved outcomes could be explained by providers of services who were well-trained, flexible and allowed parents' opportunities for choice regarding provision of services to meet child/youth and family needs. Conclusion: The findings of this study provide guideposts for further research about factors that contribute to satisfaction of families receiving waiver services for quality of life and child progress.
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Access to Health Care, Community Services, Family Attitudes, Program Effectiveness, Barriers, Quality of Life, Family Programs
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) (DHHS/ACL)
Authoring Institution: N/A
Grant or Contract Numbers: 90IF0023