ERIC Number: EJ1168767
Record Type: Journal
Publication Date: 2018-Mar
Pages: 10
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: N/A
"What's Going to Happen When We're Gone?" Family Caregiving Capacity for Older People with an Intellectual Disability in Ireland
Brennan, Damien; Murphy, Rebecca; McCallion, Philip; McCarron, Mary
Journal of Applied Research in Intellectual Disabilities, v31 n2 p226-235 Mar 2018
Background: Changing family sociodemographic factors, increased life expectancy for people with an intellectual disability, deinstitutionalization and policy prioritization of the family as the principal care provider, presents new challenges to care sustainability. Method: A qualitative study design was employed, entailing focus groups and semistructured interviews, with purposive sampling via the parent study population of the Intellectual Disability Supplement to The Irish Longitudinal Database on Ageing. Results: The traditional sociodemographic facilitators of family caregiving are in rapid decline. Families perceived limited support from services and limited future care options. Few future care plans have been formulated. A strong possibility exists of placement of older family members with an intellectual disability in out-of-family home care. Conclusion: To anticipate and provide for quality care supports, there is a need to establish proactive initiatives, for both people with an intellectual disability and their families, to facilitate the early formation of long-term care plans.
Descriptors: Foreign Countries, Intellectual Disability, Caregivers, Older Adults, Family Relationship, Qualitative Research, Focus Groups, Semi Structured Interviews, Longitudinal Studies, Demography, Social Support Groups, Social Services, Home Programs, Health Services, Long Range Planning
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Ireland
Grant or Contract Numbers: N/A