The authors remember the life of Katie Beckett, who was an outspoken advocate for disability rights and inspired the Katie Beckett Waiver Program, which allowed children to continue to be eligible for Medicaid and to have their health care needs provided in the home rather than being forced to be in a hospital or institution. Together, Katie and her mother, Julie Beckett, established the "Kids As Self-Advocates" network, a group designed to help children and youth with significant medical needs to speak up and advocate for their own care and support.