ERIC Number: ED322302
Record Type: Non-Journal
Publication Date: 1989
Pages: 82
Abstractor: N/A
ISBN: ISBN-1-85338-178-0
ISSN: N/A
EISSN: N/A
Available Date: N/A
Self-Advocacy and Parents. The Impact of Self-Advocacy on the Parents of Young People with Disabilities. Working Together? A Series of Studies Carried Out for the UK Contribution to the OECD/CERI Disabled Action Programme.
Wertheimer, Alison
A study examined the impact on parents when a young person with disabilities is involved in self-advocacy. Methodologies used included a literature review, interviews with nine families of young people with disabilities, collection of information about parent support initiatives, and discussion with a self-advocay group. During the course of the interviews, parents were asked how they felt professionals could be helpful and what they considered unhelpful. Positive experiences reported by parents included the following: having their experience and expertise as parents acknowledged, really being listened to, having access to professionals who have the right skills for the job, having their difficulties as parents really understood, and having a professional the parent can trust. Negative experiences reported by parents included the following: being asked to do fund-raising when what is needed is support for the parent, having professionals who look down on parents, professionals who do not keep their promises to help, and professionals who are in contact with a parent's family but not with each other. The report makes a number of specific recommendations to the various agencies and organizations involved with parents of young people in transition but first enumerates 12 principles underlying the recommendations, 10 of which are addressed to further and continuing education providers in England and Wales, and 7 of which are addressed to other organizations. A list of 41 references, a 16-item annotated reading list, 3 examples of parent support groups, a summary of the views of an advocacy group, and a brief case study of families and citizen advocacy are appended. (CML)
Descriptors: Adult Children, Disabilities, Foreign Countries, Fund Raising, Parent Associations, Parent Child Relationship, Parent Role, Parent Workshops, Parents, Professional Services, Self Advocacy, Social Support Groups, Specialists
Information Centre, Further Education Unit, 2 Orange Street, London WC2H 7WE, England (4.50 pounds; Working Together? pack: 12.50 pounds).
Publication Type: Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: Organisation for Economic Cooperation and Development, Paris (France). Centre for Educational Research and Innovation.
Authoring Institution: Further Education Unit, London (England).
Identifiers - Location: United Kingdom (Great Britain)
Grant or Contract Numbers: N/A
Author Affiliations: N/A