Personal decision-making is a core element of self-determination and quality of life for individuals with intellectual and developmental disabilities (IDD), however, they have traditionally been appointed a guardian to make decisions for them. Guardians are encouraged to involve their wards in decisions, but this comes with challenges as many are…

Introduction: This research investigated the views of different stakeholders regarding the specialist mental health service for people with intellectual disabilities (ID) in Singapore. Method Interviews were conducted with mental health professionals, family carers and service users with ID. Framework analysis was adopted to identify common…

This mixed-methods study explored (1) family day care (FDC) educators' confidence and capability to support children's mental health, and (2) assessed their own mental health and wellbeing. Descriptive analysis of the survey (n = 144) highlighted that most participants were in the normal range for mental health and wellbeing; however, identifying…

Participation is the goal of Swedish disability policy, but it is difficult to achieve for adults with profound intellectual (and multiple) disabilities (PI(M)D). Since these adults are dependent on others in every aspect of their lives, others control their ability to participate in everyday life decisions. This study used observations, analyzed…

The abrupt onset of the COVID-19 pandemic necessitated an unprecedented shift to remote schooling for students across the United States and required many caregivers to take a primary or secondary role as schoolteacher. The goal of this study was to better understand caregivers' experiences of schooling from home during the spring 2020 COVID-19…

One of the most popular, practical, and trusted books on inclusive education, this bestselling guide is now in a fully updated third edition--perfect for K-12 educators teaching the growing number of students on the autism spectrum. Created by Paula Kluth, a former teacher and celebrated inclusion expert who works with teachers and families…

Objective: Sleep complaints are clinically expected in children exposed to alcohol during pregnancy. We aim to reveal patterns of association among sleep--wake behaviors that are challenging in the life of children with fetal alcohol spectrum disorders (FASD). Methods: Through text-mining analyses, we numericized the transcripts of 59 caregiver's…

Primary caregivers experience consequences from being in close contact to a person with autism spectrum disorder (ASD). This study used the Involvement Evaluation Questionnaire to explore the level of consequences of 104 caregivers involved with adults with High Functioning ASD (HF-ASD) and compared these with the consequences reported by…

Black children with autism spectrum disorder (ASD) are diagnosed later than their White peers, are more likely to be misdiagnosed, and are less likely to receive early intervention services or a developmental evaluation by three years old. Using a grounded theory approach, we solicited the perspectives of parents and other primary caregivers of…

Part C of The Individuals with Disabilities Education Improvement Act, first passed in 1986, created a federal mandate for states to provide early intervention as an entitled service for children from birth to age 3 who are eligible based on delay, disability, or risk factors. Coaching the caregiver (e.g., parent) rather than child-focused therapy…

The Laurent Clerc National Deaf Education Center has begun a research project, Families of Color Advocacy, to learn about parents/caregivers of color's advocacy efforts and experiences to ensure their deaf or hard of hearing children's educational needs are met. The undertaking of this research project is based on key principles so that…

This research addresses caregivers and infants in the infant class in the day-care centre. It focuses on an intervention programme with the goal of getting to know the attitudes of caregivers and examining their influence on infants. In the programme, the caregivers will be given the possibility of sharing with peers and of learning contemporary…

Background: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has…

Custodial grandparenting (i.e. raising grandchildren on a full-time basis) is a global phenomenon. Despite the hardships associated with 24/7 custodial care, grandparents continue to invest in their grandchildren. Why they do so is a matter of much conjecture. For example, it has been posited that grandparents assume custodial care of their…

This qualitative study was designed to understand parents' perceptions of their children's participation in an inclusive surf therapy programme in the United States. Ten parents and one caregiver were interviewed about theirs and their children's experience in the surf programme. Parent discussions centred on the child, parent/caregiver,…