Background: People with intellectual disabilities are at increased risk of forced marriage compared to those without intellectual disabilities. In the UK, this risk is particularly, though not exclusively, associated with South Asian communities and is linked to the desire to secure long-term care. Method: Focus groups and semi-structured…

The United States has a long history of attempting to intervene or fix how families practice literacy together, with much less emphasis on honoring or understanding how families support literacy learning at home. This qualitative study employed a multiple-case design that examined teachers' and caregivers' efforts to bridge home and school…

Background: Staff-client relationships impact the quality of support and life of people with severe to profound intellectual disabilities and challenging behavior, but are challenging to build due to clients' intense, complex and varying support needs. The present study explores the perspectives of professionals and relatives on what affects these…

CDKL5 deficiency disorder (CDD) results in early-onset epilepsy and lifelong cognitive and motor impairments. With no validated measure for communication in CDD, this study evaluated the psychometric properties of the Communication and Symbolic Behavior Scales-Developmental Profile Infant Toddler Checklist (CSBS-DP ITC). Caregivers (n = 150;…

Background: Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the…

Purpose: Caregiver-mediated communication intervention outcomes are inconsistently measured, varying by assessment settings, materials, and activities. Standardized materials are often used for measuring outcomes, yet it remains unknown whether such standardized contexts equitably capture caregiver and child intervention outcomes representative of…

Caregivers of young children play a significant role through a child's early childhood. External factors such as environment, socio-economic status, and support system, impact children's early development experiences. This study explored how caregivers perceived their role in the early child development of 3-4-year-old children in an…

This pilot study evaluates the feasibility and efficacy of a novel school-based intervention for early childhood anxiety. Despite the established need for anxiety treatment in early childhood, there is limited access to evidence-based treatment. This study utilized one such treatment, parent child-interaction therapy (PCIT) modules developed for…

Few family child care providers attain accreditation in the research state and little research existed as to why family childcare providers make the decision to participate or not in National Association for Family Child Care Accreditation (NAFCC). The purpose of this qualitative study was to explore perspectives and experiences of family…

The present study evaluated treatment acceptability for behavioral interventions addressing challenging behaviors with Chinese caregivers of children with autism spectrum disorder. Factors influencing treatment acceptability (i.e., severity of challenging behavior and Chinese child-rearing values) were investigated. Caregivers of children aged…

The problem addressed in this qualitative case study was the ineffective use of book distribution program materials due to low self-efficacy of caregivers hinders the implementation of early literacy skills at home. The purpose of this qualitative exploratory case study was to explore caregivers' self-efficacy while implementing book distribution…

The purpose of this study was to address the research question "To what extent does perceived usefulness (PU) predict the willingness to adopt augmentative and alternative communication (AAC) technology among caregivers of children with Down syndrome (DS)?" as well as "To what extent does perceived ease of use (PEU) predict the…

At the start of the COVID-19 pandemic, home visiting programs were faced with an unprecedented challenge: How do you deliver home visiting services without visiting homes? One home visiting model--Child First--quickly pivoted to telehealth, offering caregivers the option to receive services virtually. Child First has since resumed delivering…

Background: Despite calls for greater use of research and an appetite to do so within adult social care, a gap persists between research and practice. Aims and objectives: To explore views of adult social care staff about research and its application to everyday practice. To understand how these might impact upon research use capacity-building…

Embracing parental advocacy is pivotal in navigating the challenges associated with autism spectrum disorder (ASD). Such challenges include stress, stigmas, educational challenges, and access to support and services. This study's purpose was to examine parents' and adult primary caregivers' perspectives when advocating for an individual with ASD.…