Although ethical guidelines for doing Internet research are available, most prominently those of the Association of Internet Researchers (www.aoir.org), ethical decision-making for research on publicly available, naturally-occurring data remains a major challenge. As researchers might also turn to others to inform their decisions, this article…

Obtaining informed consent can be challenging in stressful and urgent circumstances. One example is when potential participants have recently had their child removed into care; intervention is urgent and mandatory whereas participation in associated research is voluntary. Using a nested qualitative study, we examined experiences of consent…

Participants in educational technology research regularly share personal data which carries with it risks. Informing participants of these data sharing risks is often only done so through text contained within a consent form. However, conceptualizations of data sharing risks and knowledge of responsible data management practices among teachers and…

When the coronavirus pandemic was declared a public health crisis in March 2020, school psychologists were forced into situations where face-to-face interaction with their students was discouraged and in some cases, prohibited. Consequently, the traditional practice of school psychology abruptly ended. Individualized Education Plans (IEP) and…

Ethics in research and evaluation has a long standing history, one steeped with legal and moral implications. This article addresses the technicalities of ethics in evaluation as well as highlights the importance for museum educators to prioritize adopting such practices. While understanding the myriad of ethical concerns and best practices can be…

Background: It is well established that valproate, and its valproic acid, sodium valproate, and valproate semisodium forms is a highly teratogenic drug and evidence suggests that use in pregnancy leads to physical birth defects in 10% of children born compared with a background rate of 2% to 3%. Congenital malformations associated with valproate…

When conceptualising knowledge gained from tapping into an internet data pool, one may question many things which can include the role of the researcher and the researched, privacy and ethics, intention, authenticity and the vastness of scope. The researcher, regardless of research intention including moral or ethical positions, must acknowledge…

This paper focuses on microethical issues concerning interactions in which the process of informed consent occurs. It draws on research analysing the biographies and future hopes of 15- to 17-year-old girls and boys participating in targeted youth/educational programmes in the Helsinki area. The ethical challenge explored here is how to negotiate…

Qualitative research, especially studies in educational contexts, often brings up questions of ethics because the study design involves human subjects, some of whom are under age (e.g. data collected in primary education classrooms). It is not always easy for young researchers to anticipate where ethical issues might emerge while designing their…

Ideas about ethical research with young children are evolving at a rapid rate. Not only can young children participate in the informed consent process, but researchers now also recognize that the process must be meaningful for them. As part of a larger study, this article reviews children's rights and informed consent literature as the foundation…

Understanding factors associated with consent for data linkage has largely focussed on adults, but parents or guardians can also be asked to consent on behalf of children for whom they are responsible. A framework for consent decision is presented, and is tested using a large nationally representative survey asking mothers to consent for both…

It is natural that the use of visual methods in education be concerned with the consent of adults, as the many students are under the age of majority, and as such require the consent of their adult caregivers. What does this consent and integration of consent look like when considering visual methods with young adults? By opening up ownership of a…

Background: Little is known about the lives of parents with intellectual disabilities from minority ethnic communities. Previous research suggests that what it means to live with intellectual disabilities varies across cultural contexts. The current research aimed to explore how cultural values and practices impact upon the experiences of parents…

Background: Digital storytelling (DST) has been embraced in classrooms around the world as a way to unpack issues of identity and positionality which are critical for any pedagogy concerned with social justice. However, adopting this process-orientated practice into higher education raises ethical concerns especially in relation to the normative…

The study of marginalia has not been widely discussed in social sciences research and occupies a marginal space in terms of methodological legitimacy. We highlight the value of paying attention to the ways in which participants "speak back" to the researcher. This paper draws on marginalia found in surveys written or drawn by young…