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Culbertson, Anna; Lanthorne, Amanda – Across the Disciplines, 2021
This article considers ethical issues of consent and privacy during each phase of archival stewardship. The authors examine flaws in traditional archival theory that contribute to oppression and silencing and highlight unique collections and practices at San Diego State University that begin to set the 21st century archive apart. We focus on…
Descriptors: Praxis, Informed Consent, Privacy, Ethics
Panicker, Sangeeta, Ed.; Stanley, Barbara, Ed. – APA Books, 2021
A rich guide for understanding the evolving research landscape in psychology, including changes to core research ethics concepts such as informed consent, privacy, and risk of harm. This handbook offers a thorough and authoritative discussion of the ethical issues in conducting research with human participants. Each chapter poses an important…
Descriptors: Research Methodology, Psychological Studies, Psychology, Ethics
Henry J. Tyszka – ProQuest LLC, 2021
In the United States, death certificates document pre-existing conditions only when they directly contribute to a death. This precludes generating data in the event of a suicide involving a blind or visually impaired individual and for that reason existing suicide data is scarce for this population. This Grounded Theory study, with the…
Descriptors: Informed Consent, Blindness, Visual Impairments, Suicide
O'Farrelly, Christine; Tatlow-Golden, Mimi – European Early Childhood Education Research Journal, 2022
Formal consent for children's research participation legally resides with adults, and guidelines typically recommend consulting children about their participation only from 7 years of age. How can researchers support younger children's informed decision-making about their research participation, particularly in larger-scale studies without…
Descriptors: Young Children, Informed Consent, Decision Making, Research
Monique H. Harrison; Philip A. Hernandez – Grantee Submission, 2022
The interview experience is only one component of the process of interviewing -- software programmes can coordinate the pre-interview steps and begin a digitally-mediated relationship with participants long before the actual interview commences. This essay provides examples of how researchers can maximise their time and energy by digitally…
Descriptors: College Freshmen, Interviews, Computer Uses in Education, Computer Software
Sankary, Lauren R.; Zelinsky, Megan E.; Ford, Paul J.; Blackstone, Eric C.; Fox, Robert J. – Research Ethics, 2023
The ethical recruitment of participants with neurological disorders in clinical research requires obtaining initial and ongoing informed consent. The purpose of this study is to characterize barriers faced by research personnel in obtaining informed consent from research participants with neurological disorders and to identify strategies applied…
Descriptors: Informed Consent, Medical Research, Neurological Impairments, Barriers
Benjamin A. Motz; Öykü Üner; Harmony E. Jankowski; Marcus A. Christie; Kim Burgas; Diego del Blanco Orobitg; Mark A. McDaniel – Grantee Submission, 2023
For researchers seeking to improve education, a common goal is to identify teaching practices that have causal benefits in classroom settings. To test whether an instructional practice exerts a causal influence on an outcome measure, the most straightforward and compelling method is to conduct an experiment. While experimentation is common in…
Descriptors: Learning Analytics, Experiments, Learning Processes, Learning Management Systems
Chappell, Richard Yetter; Singer, Peter – Research Ethics, 2020
There is too much that we do not know about COVID-19. The longer we take to find it out, the more lives will be lost. In this paper, we will defend a principle of "risk parity": if it is permissible to expose some members of society (e.g. health workers or the economically vulnerable) to a certain level of "ex ante" risk in…
Descriptors: COVID-19, Pandemics, Medical Research, Risk
Nabukenya, Sylvia; Ochieng, Joseph; Kaawa-Mafigiri, David; Munabi, Ian; Nakigudde, Janet; Nakwagala, Frederick Nelson; Barugahare, John; Kwagala, Betty; Ibingira, Charles; Twimwijukye, Adelline; Sewankambo, Nelson; Sabakaki Mwaka, Erisa – Research Ethics, 2022
This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in…
Descriptors: Researchers, Pharmacology, Drug Therapy, Acquired Immunodeficiency Syndrome (AIDS)
Morrison-Beedy, Dianne; Ewart, Abigail; Ross, Samiha; Wegener, Rachel; Spitz, Alison – American Journal of Sexuality Education, 2022
Due to limited knowledge and exposure to sexual health information, refugee adolescent girls need health education programming and research studies that oftentimes require parental consent. We sought to understand the parental consent decision-making process of thirteen refugee parents from eight different countries who consented for their…
Descriptors: Refugees, Adolescents, Daughters, Parent Role
Freysteinsdóttir; Jóna, Freydís; Jóhannsdóttir; Halla, Guðrún – College Student Journal, 2022
The aim of this study was to examine the experiences of individuals who have been a part of friendships with negative communications that involved psychological abuse. Furthermore, to look into the opinions of participants of what could have been the instigator of such communication, their experience of ending the communication and their…
Descriptors: Informed Consent, Friendship, Antisocial Behavior, Experience
Murchan, Damian; Siddiq, Fazilat – Large-scale Assessments in Education, 2021
Analysis of user-generated data (for example process data from logfiles, learning analytics, and data mining) in computer-based environments has gained much attention in the last decade and is considered a promising evolving field in learning sciences. In the area of educational assessment, the benefits of such data and how to exploit them are…
Descriptors: Ethics, Federal Regulation, Learning Analytics, Data Use
Fourniquet, Sophie E.; Beiter, Kaylin J.; Mussell, Jason C. – Anatomical Sciences Education, 2019
Benefits from the use of cadavers in anatomical education are well described. Historically, human embryos and fetal cadavers were used in anatomy education to understand development and congenital malformations. Recently, three-dimensional printed models produced from archival fetal specimens, and online repositories of images from archival…
Descriptors: Informed Consent, Ethics, Medical Education, Anatomy
Mayne, Fiona; Howitt, Christine – International Journal of Early Childhood, 2019
This research explored how young children's research participation can be enhanced when an interactive narrative approach is embedded within research to enhance children's consent to participation and their understanding of the research process. The context for this research was a 1-h, science outreach programme delivered into Australian…
Descriptors: Foreign Countries, Young Children, Childrens Rights, Participatory Research
Costello, Eamon; Donlon, Enda; Brown, Mark – Online Learning, 2019
This study examined the ethical considerations researchers have made when investigating MOOC learners' and teachers' Twitter activity. In so doing, it sought to addresses the lack of an evidence-based understanding of the ethical implications of research into Twitter as a site of teaching and learning. Through an analysis of 31 studies, we present…
Descriptors: Social Media, Online Courses, Educational Research, Ethics