The report describes the program philosophy and accomplishments over the past decade of the Infant and Early Childhood Intervention Program (IECIP) of the Kansas University Affiliated Program (KUAP) at Parsons, Kansas, which has focused solely on delivering information and training to parents of developmentally delayed children. Topics discussed…

This special issue of a periodical focuses on building support and resources for families of children with special needs. It contains 13 articles in addition to descriptions of 10 programs serving special needs families at the local level, a list of 15 resource organizations and 10 publications/audiovisual aids, and a message from the coalition's…

The study examined family support services currently utilized by families of individuals with developmental disabilities, and family support services seen as important by respondent families in the state of Hawaii. A total of 625 questionnaires were distributed via 24 agencies; 234 useable surveys were returned for a 39% response rate. The survey…

This booklet provides an overview of Alzheimer's disease along with a description of the disease, how to find out if someone has it, and how it affects adults with developmental disabilities. It also provides information on what to do and suggests where to seek help. Specific sections discuss: (1) the etiology of the disease; (2) symptoms of…

Sixteen Israeli parents of young adults with mild/moderate mental retardation were offered a transitional training program which involved parent group sessions on future planning and, for the young adults, 16 overnights in a respite care program. Children enhanced their independent living skills; parents stress levels increased; and parents…

This fact sheet offers basic information on developing and implementing rural respite and crisis nursery programs. It first defines "respite" as temporary relief for caregivers and families of children with disabilities, chronic or terminal illnesses, and/or for children at risk of abuse and neglect. It also defines "rural" and…

The use of crisis nursery care as a viable alternative for the consumer experiencing chronic and ongoing family crises calls for consideration of various programmatic and staffing issues. Combinations of family problems, including homelessness, substance abuse, incarceration, family violence, and chronic illness of a family member, may precipitate…

This guide, based on a qualitative research study which identified primary stressors in families of children with traumatic brain injury (TBI), presents: (1) a summary of the needs of families affected by TBI; and (2) a proposed theoretical intervention model to meet those needs. The first section attempts to describe the present system of…

Two out of three Canadian women will care for a chronically ill or disabled family member. Caregiving is a valuable task that can simultaneously have great emotional rewards and significant physical, emotional, and financial costs. The time spent out of the paid labor force because of caregiving responsibilities averages 11.5 years for women…

Caregiver education and support programs help decrease the stress and burden on family caregivers of the elderly. This directory profiles 72 programs for caregivers of elders. Programs are grouped into the categories of education, respite, and support. Education programs address skills and techniques for caregiving and include program…

The survey was designed to describe and assess the types of services that Indiana agencies provide to learners with severe handicaps. The survey consisted of a section on general descriptive information and sections on daycare and transition services. Sixty-two surveys were distributed to service agencies, and 39 were returned, representing 97…

The findings of a 1978 project of the Massachusetts Developmental Disabilities Council on the need for respite care services and the various models for delivery of respite care are reported. Methodology included review of respite care regulations in 12 states, site visits and a survey of Massachusetts programs, and a survey of 339 families with…

Over the 3 years of funding, 1983-1986, the Volunteers in Partnership with Parents Project (VIPP), a Handicapped Children's Early Education Program (HCEEP) Model Demonstration Program funded by the U.S. Department of Education, designed and implemented a program model for parents in rural North Carolina who had significantly handicapped preschool…

This report presents the findings of an examination of the costs, benefits, and characteristics of Sitter Services, a program in Scotland offering child care in the child's home to parents working atypical hours or respite care for families of children with developmental disabilities. The study also explored users' and providers' knowledge of the…

Used mail survey to assess contributions of voluntary organizations providing for children with life-limiting incurable disorders. Found a variety of services, including information service, emotional support and counseling, patient and family support, and telephone helpline. Respite care was associated with annual budget size. Unstable funding,…