This collection of five factsheets provides basic information about the need for and provision of respite care services for particular populations. Each factsheet is presented in a format which provides some background information on the population, a brief discussion of the purpose of respite care programs for this group, a discussion of the…

The project sought to determine the content and form of materials that would enable parents of children with disabilities to become informed critical consumers of respite services. Project activities included establishment and utilization of a national advisory panel; an indepth review of the literature on family supports, systems change, and…

The document contains the coordinator's guide, recruitment guide, practicum guide, training model, curriculum guide, bibliography, and evaluation guide for TABS, (Trained Aides as Baby Sitters), a training program that prepares individuals to be competent sitters for deaf-blind children and that provides a curriculum tailored to the needs of the…

Described is Wisconsin's boarding home program for seven deaf-blind children. (CL)

Describes respite care, a temporary relief service for families with developmentally disabled members at home, as an essential element in preventing institutionalization of disabled persons. Major approaches for providing respite care are identified. The advantages and disadvantages of the different approaches are discussed. (Author/JAC)

Examines issues and special problems of older women caring for disabled spouses. Describes a multiservice project designed to provide support and respite for this high-risk group of caregivers. Implications for policy and practice are discussed with recommendations for further study. (RC)

This report describes the Home and Community Based Services (HCBS) Waiver to section 1915 (c) of the Federal Social Security Act that was obtained by the New York State Office of Mental Health. The HCBS Waiver affects the services provided to children and adolescents with serious emotional disturbances. Three statutory requirements are included in…

Visits were made to selected respite care and crisis nursery programs in order to describe the programs and services they offered to families of young children with special needs and to learn more about the families who used the services and the staff who provided them. The visits to 10 crisis nurseries and 24 respite care programs resulted in…

These two fact sheets, written for crisis nurseries and respite care programs serving children with disabilities, provide information on the value of volunteers and the importance of insurance coverage for program volunteers. "Volunteers: A Valuable Resource" (Becky Montgomery, Nancy Smith) gives guidelines on screening, selecting,…

This hearing addresses issues in the reauthorization of the Child Abuse Challenge Grant Program, which provides federal funds to match state funding for child abuse prevention programs, and reauthorization of the Temporary Child Care for Handicapped Children and Crisis Nurseries Act, which provides respite care for families with children with…

This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP).…

The author suggests three major factors which tend to influence stress on parents and potential marital problems associated with rearing a handicapped child: (1) Support received from family or significant others, (2) Periodic respite care, and (3) Counseling service sought early in the traumatic experience. Cited are studies showing parental…

The New Jersey State Department of Health, Gerontology Program, awarded grants to 32 adult day care centers statewide for the provision of specialized service for victims of Alzheimer's disease and related disorders and their caregivers. The primary goals of the programs were to reduce caregiver burden through providing social supports and to…

Two newsletters focus on alternatives for community living and approaches to teaching social skills to children and youth with disabilities. The first issue provides information on some family support services and community-based living arrangements that are currently available for children with severe and profound handicaps or chronic illnesses.…

The Family Support Project in Lansing, Michigan, provides a variety of family support services to help maintain severely mentally and severely multiply impaired children in their own communities, and whenever possible, in their own homes. Services offered include case management, family therapy, respite services, special needs purchases,…