Several clinical trials assessing children with hereditary neuromuscular disorders have been performed over the last decade. These studies highlighted issues related to design and performance of clinical studies assessing children with this group of disorders. This article reviews recent literature and clinical experience in this area,…

This article describes how academic scientists appear to have put their names on papers that are actually ghostwritten by for-profit companies and then published in medical journals. Some of the scientists accused of doing so deny any wrongdoing, but journal editors are already outlining measures to prevent future breaches of academic integrity.…

This study was conducted to determine if specialty areas are emerging in the magnetic resonance imaging (MRI) profession due to advancements made in the medical sciences, imaging technology, and clinical applications used in MRI that would require new developments in education/training programs and national registry examinations. In this…

The consumer health information (CHI) movement is the result of various twentieth-century ideologies and is an outgrowth of the broader consumer movement. From a sociocultural and political perspective, the consumer, civil rights, and women's movements and related societal shifts helped pave the way for the consumer health movement, which laid the…

The objective of this research was to use technology to develop an on-line orientation manual for clinical research coordinators. Many clinical research coordinators begin their careers as staff nurses and have little knowledge related to clinical research. As such, when they transition to a career in clinical research they lack the knowledge…

Objective: Media are a main source of medical information for the public, as well as for decision makers. This scenario demands a good selection of stories and correct medical reporting. Design: Our study aimed to analyze if journalistic guidelines or similar documents were already available and whether they provided satisfactory advice for…

Purpose: To determine whether experienced and inexperienced listeners rate postthyroidectomy voice samples similarly using the Consensus Auditory-Perceptual Evaluation of Voice (CAPE-V). Method: Prospective observational study of voice quality ratings of randomized and blinded voice samples was performed. Twenty-one postthyroidectomy patients'…

Medical scientists just starting at universities have been, more and more often, left empty-handed when the federal government awards grants. To offset this, the Howard Hughes Medical Institute, a nonprofit organization dedicated to medical research, announced a new program that will award $300-million to as many as 70 young scientists. The Early…

The decoding of the human genome was supposed to have been the dawn of the age of personalized medicine. It turned out, though, that health is affected by a lot more than genes. As scientists were already aware, the environment and life experiences also have a huge impact on disease. Researchers, such as Jeremy K. Nicholson, have worked to make…

Our research in statistical cognition uses both qualitative and quantitative methods. A mixed method approach makes our research more comprehensive, and provides us with new directions, unexpected insights, and alternative explanations for previously established concepts. In this paper, we review four statistical cognition studies that used mixed…

Radiology data, in the form of images and reports, is growing at a high rate due to the introduction of new imaging modalities, new uses of existing modalities, and the growing importance of objective image information in the diagnosis and treatment of patients. This increase has resulted in an enormous set of image data that is richly annotated…

Clinical and educational experience is one of the most commonly studied variables in clinical judgment research. Contrary to clinicians' perceptions, clinical judgment researchers have generally concluded that accuracy does not improve with increased education, training, or clinical experience. In this meta-analysis, the authors synthesized…

The connection that critics make between medical genetics and eugenics is historically fallacious. Activists on the political right are as mistaken as activists on the political left: Genetic screening was not eugenics in the past, is not eugenics in the present, and, unless its technological systems become radically transformed, will not be…

This article examines the privacy of personal medical information in the health research context. Arguing that biomedical research in Canada has been caught up in the government's broader neoliberal policy agenda that has positioned biotechnology as a strategic driver of economic growth, the author discusses the tension between informational…

Purpose: To learn about African American older adults' knowledge and perceptions of brain donation, factors that relate to participating or not participating in a brain donation research program, and methods to increase African American brain donation commitment rates in the context of an Alzheimer's disease (AD) research program. Design and…