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ERIC Number: EJ1461094
Record Type: Journal
Publication Date: 2025-Jan
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: EISSN-1468-3148
Available Date: 2025-02-11
'What Matters, Doctor?' A Qualitative and Inclusive Study of the Experience of Mainstream Healthcare among People with Intellectual Disabilities in Belgium
A. Miceli1; L. Lucassen1; R. Rinaldi1; N. Van Ooteghem2; D. Walter2; M. Perau2; C. Kahwaji1; A. Mayart1; E. Batselé1
Journal of Applied Research in Intellectual Disabilities, v38 n1 e70020 2025
Background: This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process. Method: Thematic analysis was performed on five focus groups with 30 participants, exploring access to healthcare. Three co-researchers played active roles in reviewing the interview, recruitment, facilitation and co-analysis of results. Results: Three types of specific needs emerged: communication, relational and support needs, as well as challenges in empowerment and shortcomings in the skills of professionals. Conclusions: Intervention programmes aimed at training doctors and healthcare professionals should consider the specific difficulties and needs of people with intellectual disability, and their input should be prioritised in the design of these interventions.
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://bibliotheek.ehb.be:2191/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Belgium
Grant or Contract Numbers: N/A
Author Affiliations: 1Clinical Orthopedagogy Department, University of Mons, Mons, Belgium; 2People First Movement, Verviers, Belgium