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Direct linkHayden, Nikita K.; Hastings, Richard P.; Kassa, Clare; Danylec, Frances – Journal of Autism and Developmental Disorders, 2023
Adult siblings are potentially important sources of care, support, advocacy, and friendship for their brothers and sisters with intellectual and developmental disabilities (IDD). Drawing on data about 851 adult siblings who completed an online national survey, we examined predictors and potential key moderators of siblings' mental distress,…
Descriptors: Poverty, Siblings, Caregivers, Adults
Sonido, Marisse T.; Hwang, Ye In; Srasuebkul, Preeyaporn; Trollor, Julian N.; Arnold, Samuel R. C. – Journal of Autism and Developmental Disorders, 2022
Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in…
Descriptors: Predictor Variables, Quality of Life, Caregivers, Adults
Zonneveld, Ellen; van Schelven, Femke; Boeije, Hennie – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The COVID-19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. Method: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105)…
Descriptors: COVID-19, Quality of Life, Pandemics, Intellectual Disability
Ghaleb H. Alnahdi; Arwa Alwadei; Susanne Schwab – International Journal of Developmental Disabilities, 2024
This comprehensive study delves into the family quality of life (FQOL) of caregivers in Saudi Arabia, focusing on those caring for individuals with autism, intellectual disabilities, and other disabilities and those without any disabilities. Employing the Arabic version of the Beach Center FQOL Scale, the research encompasses a diverse group of…
Descriptors: Foreign Countries, Family Environment, Quality of Life, Caregivers
Olthof-Nefkens, Maria W. L. J.; Derksen, Els W. C.; Debets, Frieda; de Swart, Bert J. M.; Nijhuis-van der Sanden, Maria W. G.; Kalf, Johanna G. – International Journal of Language & Communication Disorders, 2023
Background: Communication difficulties are common in people with dementia, and often present from an early stage. However, direct treatment options for people with dementia that positively influence their daily communication are scarce. Aims: To evaluate the potential impact and feasibility of a personalized logopaedic intervention. Methods &…
Descriptors: Dementia, Caregivers, Interpersonal Communication, Communication Disorders
Nieuwenhuijse, A. M.; Willems, D. L.; van Goudoever, J. B.; Olsman, E. – International Journal of Developmental Disabilities, 2022
Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Caregiver Attitudes, Caregivers
Mackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
Lopez-Espejo, Mauricio A.; Nuñez, Alicia C.; Moscoso, Odalie C.; Escobar, Raul G. – Journal of Autism and Developmental Disorders, 2021
We conducted a cross-sectional study to explore whether clinical characteristics and autism diagnostic-traits severity are associated with caregiver-reported impairment of health-related quality of life (Pediatric Quality of Life Inventory Generic Core Scales, Fourth Edition) in 93 Chilean toddlers (age: 2-4 years) with autism spectrum disorder.…
Descriptors: Autism, Pervasive Developmental Disorders, Symptoms (Individual Disorders), Quality of Life
Humphreys, Lincoln; Bigby, Christine; Iacono, Teresa – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Research has shown that there is variability in quality of life (QOL) outcomes for people with intellectual disabilities who live in group homes. The aim was to examine dimensions of group home culture as predictors of QOL outcomes. Method: The Group Home Culture Scale (GHCS) was used to measure staff perceptions of culture in 23 group…
Descriptors: Quality of Life, Intellectual Disability, Group Homes, Caregiver Attitudes
Ezeamama, Amara E.; Zalwango, Sarah K.; Tuke, Robert; Pad, Ricki Lauren; Boivin, Michael J.; Musoke, Philippa M.; Giordani, Bruno; Sikorskii, Alla – New Directions for Child and Adolescent Development, 2020
Caregiver's and child's self-reported quality of life (QOL) was defined using standardized questionnaires in a sample (N = 277) of 6-10 years old HIV-infected, HIV-exposed uninfected, and HIV-unexposed uninfected children from Uganda. Psychosocial stress (acute stress and cumulative lifetime adversity) and physiologic stress (dysregulations across…
Descriptors: Stress Variables, Stress Management, Quality of Life, Children
Thompson, Kerry – ProQuest LLC, 2017
Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder that is expressed quite differently from person to person due to the spectrum of symptoms an individual may experience. Developmentally, children who have ASD manage issues with communication and restricted or repetitive behaviors that impact their activities of daily living and/or…
Descriptors: Autism, Pervasive Developmental Disorders, Family Environment, Quality of Life
Herrema, Renske; Garland, Deborah; Osborne, Malcolm; Freeston, Mark; Honey, Emma; Rodgers, Jacqui – Journal of Autism and Developmental Disorders, 2017
Family members are often the primary caregiver for autistic adults and this responsibility may impact on the carer's wellbeing and quality of life. 109 family members of autistic adults completed an online survey assessing their wellbeing relating to their caring role for their autistic relative. Family members who were supporting an autistic…
Descriptors: Well Being, Mental Health, Family Environment, Adults
Keesler, John M.; Troxel, Jess – Intellectual and Developmental Disabilities, 2020
Direct support professionals (DSPs) are instrumental to the daily operations of organizations that support people with intellectual and developmental disabilities (IDD). With extensive responsibilities, DSPs often experience high levels of stress and burnout that can result in turnover and vacant positions. Self-care is the practice of behaviors…
Descriptors: Allied Health Occupations, Caregivers, Daily Living Skills, Well Being
Turner, Sue; Cooper Ueki, Madeline – British Journal of Learning Disabilities, 2015
Background: This paper seeks to explore the opportunities and challenges generated by current policy, guidance and legislation in England relating to older people, in terms of the practical implications for older people with learning disabilities. Methods: Using the broad themes housing, employment, social inclusion and isolation, care and…
Descriptors: Foreign Countries, Older Adults, Public Policy, Intellectual Disability
Peek, Gina G.; Bishop, Alex J. – Journal of Extension, 2016
The purpose of the study addressed in this article was to identify ways to reduce risk and improve safe aging in place among rural older adults. Resident and Extension faculty and county educators visited study participants at home to assess functional capacity and the home environment. Extension professionals may be uniquely positioned to provide…
Descriptors: Older Adults, Rural Areas, Safety, Risk
