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Christi, Rebecca A.; Roy, Daniel; Heung, Raywin; Flake, Eric – Journal of Autism and Developmental Disorders, 2023
Objective: Parenting an autistic child can affect a family's well-being. Finding resources is critical. This pilot study looked at respite's impact on parental stress, anxiety, and depression in military families and demographic factors associated with presence of respite care. Method: Participants completed three surveys on anonymous basis,…
Descriptors: Parents, Military Personnel, Military Service, Children
Coleman, Jeanine; Thompson, Talia; Riley, Karen; Allen, Korrie; Michalak, Claire; Shields, Rebecca; Berry-Kravis, Elizabeth; Hessl, David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Parenting children and young adults with intellectual disabilities, including individuals with fragile X syndrome and Down syndrome, is challenging, joyful, and complicated. Exploring how parents talk about their children, and the quality of the parent/child relationship can provide insight into the home environment and interactional…
Descriptors: Genetic Disorders, Intellectual Disability, Congenital Impairments, Parents
Norton, Michelle; Dyches, Tina Taylor; Harper, James M.; Roper, Susanne Olsen; Caldarella, Paul – Journal of Autism and Developmental Disorders, 2016
Parents of children with disabilities are at risk for high stress and low marital quality; therefore, this study surveyed couples (n = 112) of children with Down syndrome (n = 120), assessing whether respite hours, stress, and uplifts were related to marital quality. Structural equation modeling indicated that respite hours were negatively related…
Descriptors: Stress Variables, Marital Satisfaction, Down Syndrome, Structural Equation Models
Harper, Amber; Dyches, Tina Taylor; Harper, James; Roper, Susanne Olsen; South, Mikle – Journal of Autism and Developmental Disorders, 2013
Parents of children with autism spectrum disorders (ASD) are at risk for having higher stress and lower marital quality than other parents. Survey data regarding respite care, marital quality, and daily hassles and uplifts were obtained from 101 mother-father dyads who were together raising at least one child with ASD (total # of children = 118).…
Descriptors: Respite Care, Pervasive Developmental Disorders, Autism, Parents
McConkey, Roy; Kelly, Fionnola; Mannan, Hasheem; Craig, Sarah – Journal of Applied Research in Intellectual Disabilities, 2010
Background: Respite or short breaks are frequently sought by parents and demand for them usually exceeds their availability. Methods: Using data from a national database in Ireland of around 16 000 persons living with family carers, the availability of overnight respite provision was monitored over an 8-year period along with the recorded needs…
Descriptors: Mental Retardation, Foreign Countries, Databases, Respite Care
McCoyd, Judith L. M.; Akincigil, Ayse; Paek, Eun Kwang – Journal of Family Social Work, 2010
The evidence that the birth of a child with a disability leads to divorce or separation is equivocal, with the majority of recent research suggesting that such a birth and childrearing may be stressful, but not necessarily toxic, to the caregiver relationship. Such research has been limited by small sample sizes and nonrepresentative samples and…
Descriptors: Caregivers, Statistical Significance, Respite Care, Disabilities
Burton-Smith, Rosanne; McVilly, Keith R.; Yazbeck, Marie; Parmenter, Trevor R.; Tsutsui, Takako – Journal of Intellectual & Developmental Disability, 2009
Background: As part of an international, multicentre project, the service and support needs of Australian family carers were investigated. Method: A sample of 1,390, 448 family carers completed a self-report survey, including an adaptation of the Family Needs Survey (FNS) and several open-ended questions. A mixed method design was used, employing…
Descriptors: Family Needs, Access to Information, Respite Care, Foreign Countries
Korn, Leslie; Logsdon, Rebecca G.; Polissar, Nayak L.; Gomez-Beloz, Alfredo; Waters, Tiffany; Ryser, Rudolph – Gerontologist, 2009
Purpose: Although it is widely recognized that caregivers of individuals with dementia experience elevated stress that places them at increased risk for health problems, little is known about how caregiving stress may be alleviated among underserved ethnic minority populations. The purpose of this study was to compare a complementary and…
Descriptors: American Indians, Dementia, Quality of Life, Physical Health
Daire, Andrew P.; Torres, Jennifer; Edwards, Nivischi N. – ADULTSPAN Journal, 2009
The authors describe how 3 groups of family caregivers (spouses, daughters, and sons) are affected by the caregiving role. In addition, clinical considerations and interventions for mental health professionals working with these different groups of family caregivers are discussed. A clinical case example is also presented. (Contains 2 tables.)
Descriptors: Daughters, Mental Health Workers, Caregivers, Caregiver Role
Jardim, Claudia; Pakenham, Kenneth I. – Clinical Psychologist, 2009
Informal carers of an adult with mental illness have asked that respite care be an integral component of mental health service provision. The present study involved a pilot investigation of the effectiveness of accessing respite care for carers of individuals with a mental illness. It was hypothesised that compared to carers who have not accessed…
Descriptors: Health Services, Life Satisfaction, Mental Disorders, Mental Health Programs

Cavanagh, Joy; Ashman, Adrian F. – Australia and New Zealand Journal of Developmental Disabilities, 1985
The review deals with the impact of stress upon the parents and the siblings of children with intellectual disabilities. The basic proposition expounded is the need for respite care to allow the family to engage in those activities that are part of the experience enjoyed by other families within the community. (Author/CL)
Descriptors: Family Relationship, Mental Retardation, Respite Care, Stress Variables
A Meta-Analytic Review of Interventions for Caregiver Distress: Recommendations for Future Research.

Knight, Bob G.; And Others – Gerontologist, 1993
Summarizes articles from 1980 to 1990 on psychosocial interventions and respite care for caregivers. Review is limited to controlled studies that attempted to change emotional distress in caregivers. Cumulatively, studies reviewed suggest that individual psychosocial interventions and respite programs are moderately effective; psychosocial…
Descriptors: Counseling Techniques, Family Caregivers, Intervention, Respite Care

Larkin, John P.; Hopcroft, Barbara Most – Health & Social Work, 1993
Obtained data on family caregiver stress from 23 family caregivers before, during, and following respite. Findings suggest that stress was moderated by in-hospital respite program for patients with Alzheimer's disease. Although short-term benefits may be realized for caregivers, in-hospital Alzheimer's respite care may present particular risk for…
Descriptors: Alzheimers Disease, Family Caregivers, Hospitals, Patients
Congress of the U.S., Washington, DC. House Select Committee on Children, Youth, and Families. – 1985
The record of the 1985 hearing addresses policy issues concerning families of disabled children. Statements are presented from parents of severely disabled children, educators, researchers, agency personnel, and disabled consumers. Topics addressed include sources of family stress, need for financial and respite services, the effects on other…
Descriptors: Disabilities, Family Programs, Family Relationship, Hearings

Ehrlich, Phyllis; White, Judith – Gerontologist, 1991
Describes Time Off Promotes Strength (TOPS), program for caregivers of Alzheimer's victims which provides in-home and day program services. Explains that, through application of service/training model adapted from Global Deterioration Scale, TOPS maintains high quality of services with limited but highly trained professional staff. (Author/NB)
Descriptors: Alzheimers Disease, Coping, Family Caregivers, Individual Needs
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