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Christi, Rebecca A.; Roy, Daniel; Heung, Raywin; Flake, Eric – Journal of Autism and Developmental Disorders, 2023
Objective: Parenting an autistic child can affect a family's well-being. Finding resources is critical. This pilot study looked at respite's impact on parental stress, anxiety, and depression in military families and demographic factors associated with presence of respite care. Method: Participants completed three surveys on anonymous basis,…
Descriptors: Parents, Military Personnel, Military Service, Children
Coleman, Jeanine; Thompson, Talia; Riley, Karen; Allen, Korrie; Michalak, Claire; Shields, Rebecca; Berry-Kravis, Elizabeth; Hessl, David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Parenting children and young adults with intellectual disabilities, including individuals with fragile X syndrome and Down syndrome, is challenging, joyful, and complicated. Exploring how parents talk about their children, and the quality of the parent/child relationship can provide insight into the home environment and interactional…
Descriptors: Genetic Disorders, Intellectual Disability, Congenital Impairments, Parents
Norton, Michelle; Dyches, Tina Taylor; Harper, James M.; Roper, Susanne Olsen; Caldarella, Paul – Journal of Autism and Developmental Disorders, 2016
Parents of children with disabilities are at risk for high stress and low marital quality; therefore, this study surveyed couples (n = 112) of children with Down syndrome (n = 120), assessing whether respite hours, stress, and uplifts were related to marital quality. Structural equation modeling indicated that respite hours were negatively related…
Descriptors: Stress Variables, Marital Satisfaction, Down Syndrome, Structural Equation Models
Harper, Amber; Dyches, Tina Taylor; Harper, James; Roper, Susanne Olsen; South, Mikle – Journal of Autism and Developmental Disorders, 2013
Parents of children with autism spectrum disorders (ASD) are at risk for having higher stress and lower marital quality than other parents. Survey data regarding respite care, marital quality, and daily hassles and uplifts were obtained from 101 mother-father dyads who were together raising at least one child with ASD (total # of children = 118).…
Descriptors: Respite Care, Pervasive Developmental Disorders, Autism, Parents
McConkey, Roy; Kelly, Fionnola; Mannan, Hasheem; Craig, Sarah – Journal of Applied Research in Intellectual Disabilities, 2010
Background: Respite or short breaks are frequently sought by parents and demand for them usually exceeds their availability. Methods: Using data from a national database in Ireland of around 16 000 persons living with family carers, the availability of overnight respite provision was monitored over an 8-year period along with the recorded needs…
Descriptors: Mental Retardation, Foreign Countries, Databases, Respite Care
McCoyd, Judith L. M.; Akincigil, Ayse; Paek, Eun Kwang – Journal of Family Social Work, 2010
The evidence that the birth of a child with a disability leads to divorce or separation is equivocal, with the majority of recent research suggesting that such a birth and childrearing may be stressful, but not necessarily toxic, to the caregiver relationship. Such research has been limited by small sample sizes and nonrepresentative samples and…
Descriptors: Caregivers, Statistical Significance, Respite Care, Disabilities
Burton-Smith, Rosanne; McVilly, Keith R.; Yazbeck, Marie; Parmenter, Trevor R.; Tsutsui, Takako – Journal of Intellectual & Developmental Disability, 2009
Background: As part of an international, multicentre project, the service and support needs of Australian family carers were investigated. Method: A sample of 1,390, 448 family carers completed a self-report survey, including an adaptation of the Family Needs Survey (FNS) and several open-ended questions. A mixed method design was used, employing…
Descriptors: Family Needs, Access to Information, Respite Care, Foreign Countries
Korn, Leslie; Logsdon, Rebecca G.; Polissar, Nayak L.; Gomez-Beloz, Alfredo; Waters, Tiffany; Ryser, Rudolph – Gerontologist, 2009
Purpose: Although it is widely recognized that caregivers of individuals with dementia experience elevated stress that places them at increased risk for health problems, little is known about how caregiving stress may be alleviated among underserved ethnic minority populations. The purpose of this study was to compare a complementary and…
Descriptors: American Indians, Dementia, Quality of Life, Physical Health
Daire, Andrew P.; Torres, Jennifer; Edwards, Nivischi N. – ADULTSPAN Journal, 2009
The authors describe how 3 groups of family caregivers (spouses, daughters, and sons) are affected by the caregiving role. In addition, clinical considerations and interventions for mental health professionals working with these different groups of family caregivers are discussed. A clinical case example is also presented. (Contains 2 tables.)
Descriptors: Daughters, Mental Health Workers, Caregivers, Caregiver Role
Jardim, Claudia; Pakenham, Kenneth I. – Clinical Psychologist, 2009
Informal carers of an adult with mental illness have asked that respite care be an integral component of mental health service provision. The present study involved a pilot investigation of the effectiveness of accessing respite care for carers of individuals with a mental illness. It was hypothesised that compared to carers who have not accessed…
Descriptors: Health Services, Life Satisfaction, Mental Disorders, Mental Health Programs
Families of Children with Disabilities: A Review of Literature and Recommendations for Interventions
Neely-Barnes, Susan L.; Dia, David A. – Journal of Early and Intensive Behavior Intervention, 2008
Children with disabilities receive most of their support from families. While most family caregivers are mothers or fathers, grandparents are increasingly providing care for children with disabilities. In addition, family caregivers come from diverse cultural backgrounds that impact their views on disability. This paper reviews the literature on…
Descriptors: Caregivers, Disabilities, Literature Reviews, Parents
Douma, J. C. H.; Dekker, M. C.; Koot, H. M. – Journal of Intellectual Disability Research, 2006
Background: Parents of children and adolescents with both intellectual disabilities (ID) and psychopathology often experience high levels of parenting stress. To support these parents, information is required regarding the types of support they need and whether their needs are met. Method: In a sample of 745 youths (aged 10-24 years) with moderate…
Descriptors: Parents, Psychopathology, Child Rearing, Anxiety