The "support not supplant" theory of family support services is explained, and results of a national study of trends in family support are analyzed. Current efforts, state legislation, funding levels, respite services, financial assistance, and emerging issues are discussed. A directory of state family support programs is appended. (PB)

This site visit report describes the development and activities of the New Hampshire Family Support Network for families of people with developmental disabilities, and is based on a review of documents, interviews with key people, and participant observation. It begins with a brief history of family activism in New Hampshire, noting the early high…

The handbook provides parents of children with disabilities guidance on planning for the child's future needs with special attention to resources and laws of Iowa. Section 1 gives a Future Planning Checklist and definitions of common legal terms. Section 2 addresses estates, trusts, and wills and provides common estate planning questions and…

The conference on "Support for Family Caregivers" reported in this document was designed to identify, encourage the development of, and disseminate information about effective approaches for strengthening the capacity of families to care for their impaired relatives. The first of two presentations in the opening plenary session reviews the needs…

This bulletin reflects the commitment of Syracuse University's Center on Human Policy to the idea that children belong with families. The bulletin contains a policy statement which recommends; that all children, regardless of disability, belong with families and need enduring relationships with adults; that families with severely disabled children…

Describes developmental and behavioral characteristics of homeless young children and their parents. Reports on how states and communities are attempting to meet the early education and care of young children in homeless families. Discusses the needs or problems that early education and care programs that include homeless children should address.…

The Delaware FIRST Program is designed to meet the needs of handicapped infants and toddlers through trained family day care providers. The program is based on a developmental family systems approach. It strives to provide families with ongoing support by offering mainstreamed family day care or respite care, by developing and/or facilitating an…

The findings of a 1978 project of the Massachusetts Developmental Disabilities Council on the need for respite care services and the various models for delivery of respite care are reported. Methodology included review of respite care regulations in 12 states, site visits and a survey of Massachusetts programs, and a survey of 339 families with…

The Maryland Family Support Services Consortium is a 3-year demonstration project which developed unique family support models at five sites serving the needs of families with a developmentally disabled child (ages birth to 21). Caseworkers provided direct intensive services to 224 families over the 3-year period, including counseling, liaison and…

This report examines respite care services that provide temporary relief to family members and other caretakers of children at risk of abuse or neglect including children who are mentally retarded, behaviorally disturbed, physically disabled, or chronically or terminally ill. In 1988 the 25 states surveyed funded 111 respite care programs as did…

Provides parents and other concerned persons with information about some of the family support services and community-based living arrangements that are currently available to assist families in meeting the needs of their children who are severely and profoundly handicapped and/or chronically ill. Discussion includes funding sources, respite care,…

This report presents findings of a Minnesota study group which reviewed the costs and structures under which developmental disabilities services are provided. The group conducted a series of town meetings throughout the state and concluded with a toll-free call-in day. Six themes emerged from the meetings: (1) "We have a lot to be proud of…

This final report describes activities and accomplishments of a federally supported program to provide services for children with deaf-blindness in Missouri. The project focused on the development, implementation, and evaluation of a four-component statewide comprehensive service delivery model to serve 193 deaf-blind children and youth through:…

This paper profiles nine model programs for supporting families who care for a child with a severe illness or one or more disabilities and discusses current trends as they emerged from interviews with key persons in the field. Core components examined include self-help, advocacy, parent education, respite care, family-centered case management, and…