Family members of children with disabilities have become more involved in their children's care and have adopted the role of primary caregiver. Due to the varying degrees of the condition, children with cerebral palsy (CP) often require greater involvement from their caregivers. Fifteen caregivers for children with CP residing in rural communities…

Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families' needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders. Methods:…

Background: This study explored the experiences of working mothers with an adult child with intellectual disabilities to understand how they reconcile paid work and care responsibilities. Methods: Fifteen working mothers in Taiwan with an adult child with intellectual disabilities were interviewed, and an interpretative phenomenological approach…

Summer camps are commonly implemented as a psychosocial intervention for children with chronic illnesses; however, there have been few published consumer (parent and child) satisfaction evaluations of summer camps. Such evaluations are important both for improving existing services for children and families, as well as to build an empirical…

The evidence that the birth of a child with a disability leads to divorce or separation is equivocal, with the majority of recent research suggesting that such a birth and childrearing may be stressful, but not necessarily toxic, to the caregiver relationship. Such research has been limited by small sample sizes and nonrepresentative samples and…

Care managers, including nurses and social workers, often lack information that would help them more effectively target services to caregivers' needs. Useful information includes the type of services that will be most helpful for caregivers and the best time to start using these services. Generally, caregivers are simply told what services they…

The authors describe how 3 groups of family caregivers (spouses, daughters, and sons) are affected by the caregiving role. In addition, clinical considerations and interventions for mental health professionals working with these different groups of family caregivers are discussed. A clinical case example is also presented. (Contains 2 tables.)

Background: This study examines the effects and associated factors of respite care, which was legislated as a community service for adults with an intellectual disability (ID) in Taiwan in 1997. Method: A total of 116 family carers who live with an adult with ID and have utilised the respite care program were surveyed using standardised measures.…

Results of a survey of 2,800 parents of children with disabilities found that families are essentially pleased with their respite services, but are dissatisfied with the services' lack of flexibility, arbitrary limits on use, inability to respond to crises, lack of parental voice in forming or reforming services, etc. (JDD)

This two-page fact sheet summarizes typical approaches, programs, and resources in the area of family support and respite programs for families with special needs. Principles of family support programs are listed, stressing the common goal of increasing the ability of families to successfully nurture children. Typical components of such programs…

Profiles statewide program to support family caregivers of brain-impaired adults. Identifies major needs and problems of family caregivers and delineates service interventions to meet needs. Presents demographic data on major characteristics of over 3,000 family caregivers and cognitively impaired patients. (Author/NB)

The newsletter offers perspectives on the provision of family support services for families with disabled members. An introductory article by Madeleine Will, Assistant Secretary for Special Education and Rehabilitative Services, stresses the impressive coping skills exhibited by many such families and their relationship to service professionals.…

Parents of 36 autistic children were assessed on child functioning and family stress variables in relation to use of respite care services. Results suggest that parents with more difficult children need and use respite care more than others. Nonusers of respite care reported a higher perception of social support than users. (JDD)

Studied effects of five 12-month support strategy treatments on family caregivers (N=541) of impaired elderly persons. Found caregivers of elderly persons remaining in community reported lower levels of subjective burden. Found services delayed nursing home placement by adult child caregivers but encouraged placement by spouse caregivers.…

Respite and in-home services have been identified by caregivers as vital for maintaining a frail older person in the community. A program called The Alzheimer Support/Tender Loving Caregivers Project was undertaken in northwest Indiana to strengthen the informal support network of disabled elderly in the community. An interfaith coalition of…